Find all needed information about Acrodysostosis Support. Below you can see links where you can find everything you want to know about Acrodysostosis Support.
https://www.acrodysostosis.com/
Welcome to Acrodysostosis Support and Research! We are a group of people from across the world brought together by the shared goal of learning more about the rare genetic disease, acrodysostosis. We are made up of the people who are living with the disease, their parents, family members, and friends.
https://rarediseases.org/rare-diseases/acrodysostosis/
Early intervention is important to ensure that children with acrodysostosis reach their full potential. Special services that may be beneficial to affected children may include special remedial education, social support, and/or other medical, social, and/or vocational services.
https://www.acrodysostosis.com/contact
©2018 by Acrodysostosis Support and Research . Send. What's our story? What is Acrodysostosis? Who we are. News & stories. Connect with us. More ...
https://www.acrodysostosis.com/our-team
Kimberley is the mother of Francesca May, who was diagnosed with acrodysostosis type 2 in August 2018. Since her daughter’s diagnosis and joining the Acrodysostosis Support and Research community, Kimberley has been extremely supportive of furthering the cause and highlighting the need for more research about the disease.
https://twitter.com/acrodysostosis
The latest Tweets from acrodysostosis - support and research🎗 (@acrodysostosis). rare genetic disease please support us by following and sharing to raise awareness🦋 page owners; @callmejordsxo @ninaknight8. United KingdomFollowers: 94
https://www.facebook.com/acrodysostosis/
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https://medlineplus.gov/ency/article/001248.htm
Acrodysostosis is an extremely rare disorder that is present at birth (congenital). It leads to problems with the bones of the hands, feet, and nose, and intellectual disability.
https://rarediseases.info.nih.gov/diseases/5724/acrodysostosis
80 rows · Nov 01, 2016 · Support and advocacy groups can help you connect with other patients …
https://www.acrodysostosis.com/what-is-acrodysostosis
Please be aware that Acrodysostosis Support and Research does not offer advice. We promote research and share experiences and contacts. We promote research and share experiences and contacts. Please contact a healthcare professional for medical advice.
https://www.acrodysostosis.com/blog/francesca#!
May 03, 2016 · ©2018 by Acrodysostosis Support and Research Francesca was always a very quiet baby, who loved snuggles and playing peek a boo. However, her small hands and unusual development suggested that something was a little different about her.
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