Acrodysostosis Support

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What's our story? www.acrodysostosis.c

    https://www.acrodysostosis.com/
    Welcome to Acrodysostosis Support and Research! We are a group of people from across the world brought together by the shared goal of learning more about the rare genetic disease, acrodysostosis. We are made up of the people who are living with the disease, their parents, family members, and friends.

Acrodysostosis - NORD (National Organization for Rare ...

    https://rarediseases.org/rare-diseases/acrodysostosis/
    Early intervention is important to ensure that children with acrodysostosis reach their full potential. Special services that may be beneficial to affected children may include special remedial education, social support, and/or other medical, social, and/or vocational services.

Connect with us www.arcodysostosis.c

    https://www.acrodysostosis.com/contact
    ©2018 by Acrodysostosis Support and Research . Send. What's our story? What is Acrodysostosis? Who we are. News & stories. Connect with us. More ...

Who we are www.acrodysostosis.c

    https://www.acrodysostosis.com/our-team
    Kimberley is the mother of Francesca May, who was diagnosed with acrodysostosis type 2 in August 2018. Since her daughter’s diagnosis and joining the Acrodysostosis Support and Research community, Kimberley has been extremely supportive of furthering the cause and highlighting the need for more research about the disease.

acrodysostosis - support and research🎗 (@acrodysostosis ...

    https://twitter.com/acrodysostosis
    The latest Tweets from acrodysostosis - support and research🎗 (@acrodysostosis). rare genetic disease please support us by following and sharing to raise awareness🦋 page owners; @callmejordsxo @ninaknight8. United KingdomFollowers: 94

Acrodysostosis - support and research - Home Facebook

    https://www.facebook.com/acrodysostosis/
    Acrodysostosis - support and research. 186 likes. Cause. Facebook is showing information to help you better understand the purpose of a Page.Followers: 189

Acrodysostosis: MedlinePlus Medical Encyclopedia

    https://medlineplus.gov/ency/article/001248.htm
    Acrodysostosis is an extremely rare disorder that is present at birth (congenital). It leads to problems with the bones of the hands, feet, and nose, and intellectual disability.

Acrodysostosis Genetic and Rare Diseases Information ...

    https://rarediseases.info.nih.gov/diseases/5724/acrodysostosis
    80 rows · Nov 01, 2016 · Support and advocacy groups can help you connect with other patients …

What is Acrodysostosis? www.acrodysostosis.c

    https://www.acrodysostosis.com/what-is-acrodysostosis
    Please be aware that Acrodysostosis Support and Research does not offer advice. We promote research and share experiences and contacts. We promote research and share experiences and contacts. Please contact a healthcare professional for medical advice.

Acrodysostosis doesn't stop Francesca!

    https://www.acrodysostosis.com/blog/francesca#!
    May 03, 2016 · ©2018 by Acrodysostosis Support and Research Francesca was always a very quiet baby, who loved snuggles and playing peek a boo. However, her small hands and unusual development suggested that something was a little different about her.



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