Acromegaly Support Canada

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ACROMEGALY SUPPORT - Home

    http://www.acromegalywest.com/
    Support Group for Acromegaly Patients in Western Canada This is the website of the Vancouver Acromegaly Support Group which is focused on providing support for acromegaly and gigantism patients in British Columbia, but also other provinces in Western Canada.

Acromegaly Awareness Day Canadian Pituitary Patient Network

    https://canadianpituitary.org/acromegaly-awareness-day
    November 1st, Acromegaly Awareness Day, is our day to spread the word about this rare condition and promote early diagnosis and treatment, which in turn can reduce the risk of complications, improve symptoms and break the cycle of isolation. Together, let's raise the profile of acromegaly in Canada!

Support - Acromegaly.Care

    https://www.acromegaly.care/support/
    There are many well-established organizations that provide resources to people living with acromegaly.These groups are organized and managed by experts who understand the acromegaly patient community, and offer an established network of support, education and awareness.

Acromegaly Ottawa – A home for those with this rare ...

    https://acromegalyottawa.com/
    Nov 01, 2019 · Pfizer Canada recently invited Dianne Sauvé to participate in a video project that explored the experiences and perspectives of individuals struggling with medical issues. She discussed her journey with acromegaly, the challenges involved with a rare disease diagnosis, and the advocacy work of the Acromegaly Ottawa Awareness & Support Network.

Atlantic Acromegaly Support

    http://www.acromegalysupport.ca/
    Atlantic Acromegaly Support. We are a support group for those who have been diagnosed with Acromegaly within the Atlantic Canada region. We have meetings twice yearly and of the over 70 people who have been diagnosed with Acromegaly within the Atlantic Provinces, nearly 25 …

Team - ACROMEGALY SUPPORT

    http://www.acromegalywest.com/team.html
    Deanna Badiuk-Black President & Founder After being diagnosed in 2008 with an ultra rare disease called acromegaly and realizing there was no support system in Western Canada, I moved to Chilliwack, BC and decided to start a support group for acromegaly patients.

Local Support Groups Canadian Pituitary Patient Network

    https://canadianpituitary.org/local-support-groups
    The Canadian Pituitary Patient Network is striving to set up a network of support groups across Canada. These groups will be run by dedicated volunteers who give their time to offer support and information to anyone living in their area affected by a pituitary condition or related adrenal condition.

Acromunity: Acromegaly Patient Support Groups

    https://www.acromunity.com/get-support/support-groups-for-people-with-acromegaly/
    Patient support groups for people living with acromegaly can often provide you with social and emotional support, as well as details of local activities and events that you may be able to attend. Finding a national or local support group may also help you make contact with other people in your area that you can share your experiences with.

Resources – Acromegaly Ottawa

    https://acromegalyottawa.com/resources/
    Wikipedia – Acromegaly. The Pituitary Foundation. Vancouver Acromegaly Support Group. Mayo Clinic – Acromegaly symptoms and causes. National Organization for Rare Disorders – Acromegaly. Canadian Organization for Rare Diseases. Acromegaly Ontario and Central Canada Facebook group. Atlantic Acromegaly Support Facebook group. Pituitary ...

Acromegaly Community

    https://acromegalycommunity.org/
    OUR MISSION is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including: surgery, medication, radiation, and post diagnosis support.



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