Find all needed information about Acromegaly Support Organizations. Below you can see links where you can find everything you want to know about Acromegaly Support Organizations.
https://www.acromegaly.care/support/
There are many well-established organizations that provide resources to people living with acromegaly.These groups are organized and managed by experts who understand the acromegaly patient community, and offer an established network of support, education and awareness.
https://www.acromunity.com/get-support/support-groups-for-people-with-acromegaly/
Patient support groups for people living with acromegaly can often provide you with social and emotional support, as well as details of local activities and events that you may be able to attend. Finding a national or local support group may also help you make contact with other people in your area that you can share your experiences with.
https://acromegalycommunity.org/find-support
It focuses on general pituitary tumors and acromegaly in a more general sense as a pituitary disorder; AcromegalyInfo.com This is a layperson's site for acro on understanding, living with, and treating acro. NORD (National Organization for Rare Diseases): Specializes in "orphan" diseases and research. Hormone Foundation: 14,000 members.
https://rarediseases.org/organizations/acromegaly-community-inc/
The Acromegaly Community is a voluntary, non-profit organization whose mission is to provide an emotional and communal support network for people touched by acromegaly. They offer a central location of medical information on issues including surgery, medication, radiation, and post-diagnosis support.
https://www.thinkgenetic.com/diseases/acromegaly/organizations/59618
Where can I find others with acromegaly? What tests are needed to diagnose acromegaly? Is there more than one name for acromegaly? If someone in my family has acromegaly, how can I find out if I am at risk? What research is ongoing for acromegaly?
https://www.dailystrength.org/group/acromegaly
Nov 22, 2019 · Acromegaly Support Group. Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). Acromegaly most commonly affects middle-aged adults and can result in serious illness and premature death.
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