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https://www.actionduchenne.org/
Action Duchenne has a clear vision: a world where lives are no longer limited by Duchenne muscular dystrophy. FREE Action Duchenne Science on Tour Events 20 locations across the UK, learn about the research process, plan an imaginary clinical trial, ask questions, gain vital information.
https://www.actionduchenne.org/a-message-from-our-patron-harry-hill/
Nov 18, 2019 · Harry Hill, one of our amazing Patrons, sent us a video which we proudly played at the Gala Dinner on Friday at the Action Duchenne International Conference 2019.. What a great guy! Thank you Harry for all your support and for giving our families so many laughs and inspiration.
https://www.actionduchenne.org/ga-solicitors-charity-of-the-year/
Dec 04, 2019 · Action Duchenne is a deserving small charity that is not only looking to improve the lives of those living with Duchenne, but also supports their families and creates a sense of community. Steve Ramsden, Managing Partner at GA Solicitors. On behalf of our entire community we would like to thank them for their life changing support.
https://www.parentprojectmd.org/79-members-of-congress-send-letter-of-strong-support-for-duchenne-priorities-for-next-years-budget/
Apr 11, 2019 · 79 members of Congress in total (59 in the House and 20 in the Senate) agreed to support our request sending a strong message of support behind Duchenne research, public health, drug development, and patient support initiatives. Both letters have bi-partisan support, which is really important for these efforts.
https://www.actionduchenne.org/events/
Are you looking for support or do you have questions about our work, research or fundraising? Contact our friendly team on 020 7250 8240, email us at [email protected] or fill in our contact form.
https://www.actionduchenne.org/siblings/
We understand the importance of nurturing siblings of young people with complex needs. Takin’ Charge Takin’ Charge was Action Duchenne’s Lottery-funded Transition to Adulthood Project for young people with Duchenne aged 14 – 19 years. The Takin’ Charge programme provided aspirational information for teenagers and their families about the choices available beyond school, including ...
https://www.jrmyprtr.com/point-message-support-action-message-grid/
Dec 11, 2014 · This article is part of a series on creating key messages. I recommend reading the article on how to create key messages first.. Cumbersome name aside, the Point, Message, Support, Action grid is a nice way to organize your messages, associate them to a specific call to action and include supporting evidence.
https://www.facebook.com/ActionDuchenne/
Action Duchenne, London, United Kingdom. 6.5K likes. Developing effective treatments for all, building a community and striving for a more inclusive society for those with Duchenne are our three core...4.9/5(45)
https://www.youtube.com/channel/UCy9g9gdMEtav_b8P3SjiGJA
Action Duchenne Patron, Harry Hill, shares a message for World Duchenne Awareness Day. - Duration: 69 seconds.
The Duchenne Family Support Group (DFSG) exists to provide support for families with children diagnosed as having Duchenne Muscular Dystrophy (DMD). The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals. The DFSG helps bring families together for mutual support, sharing of ...
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