Find all needed information about Alagille Syndrome Support. Below you can see links where you can find everything you want to know about Alagille Syndrome Support.
We provide you with updates on Alagille Syndrome research, clinical trials of interest, free materials, and phone support. You’ll find links to social media groups and information about physicians and hospitals working with ALGS patients.
https://alagille.org/?page_id=1865
“Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”
https://www.niddk.nih.gov/health-information/liver-disease/alagille-syndrome
Alagille syndrome is a genetic disorder that may affect many different parts of the body, including the liver. A person with Alagille syndrome has fewer than the normal number of small bile ducts inside the liver. As bile builds up in the liver, it may cause liver damage. The most common signs and ...
https://rarediseases.info.nih.gov/diseases/804/alagille-syndrome
88 rows · Oct 20, 2017 · Alagille syndrome is a genetic syndrome that can affect the liver and other …
https://ghr.nlm.nih.gov/condition/alagille-syndrome
Oct 29, 2019 · Alagille syndrome is a genetic disorder that can affect the liver, heart, and other parts of the body.. One of the major features of Alagille syndrome is liver damage caused by abnormalities in the bile ducts. These ducts carry bile (which helps to digest …
https://en.wikipedia.org/wiki/Alagille%27s_syndrome
Alagille syndrome is a genetic disorder that affects primarily the liver and the heart.Problems associated with the disorder generally become evident in infancy or early childhood. The disorder is inherited in an autosomal dominant pattern, and the estimated prevalence of Alagille syndrome is 1 …Specialty: Medical genetics
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4935120/
Jun 30, 2016 · Alagille syndrome is an autosomal dominant, complex multisystem disorder characterized by the presence of three out of five major clinical criteria: cholestasis with bile duct paucity on liver biopsy, congenital cardiac defects (with particular involvement of the pulmonary arteries), posterior embryotoxon in the eye, characteristic facial features, and butterfly vertebrae.Cited by: 26
https://liverfoundation.org/for-patients/about-the-liver/diseases-of-the-liver/alagille-syndrome/
Alagille Syndrome is an inherited disorder that closely resembles other forms of liver disease seen in infants and young children. However, a group of unusual features affecting other organs distinguishes Alagille syndrome from the other liver and biliary diseases of infants.
https://www.thinkgenetic.com/diseases/alagille-syndrome/organizations/7506
Are there good support groups for Alagille syndrome? The Alagille Syndrome Alliance (www.alagille.org) is a good place to start if you are looking for support. They host events every three years to help families connect with each other.
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