Alagille Syndrome Support

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Home The Alagille Syndrome Alliance

    https://alagille.org/
    We provide you with updates on Alagille Syndrome research, clinical trials of interest, free materials, and phone support. You’ll find links to social media groups and information about physicians and hospitals working with ALGS patients.

SUPPORT GROUPS The Alagille Syndrome Alliance

    https://alagille.org/?page_id=1865
    “Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”

Alagille Syndrome NIDDK

    https://www.niddk.nih.gov/health-information/liver-disease/alagille-syndrome
    Alagille syndrome is a genetic disorder that may affect many different parts of the body, including the liver. A person with Alagille syndrome has fewer than the normal number of small bile ducts inside the liver. As bile builds up in the liver, it may cause liver damage. The most common signs and ...

Alagille syndrome Genetic and Rare Diseases Information ...

    https://rarediseases.info.nih.gov/diseases/804/alagille-syndrome
    88 rows · Oct 20, 2017 · Alagille syndrome is a genetic syndrome that can affect the liver and other …

Alagille syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/alagille-syndrome
    Oct 29, 2019 · Alagille syndrome is a genetic disorder that can affect the liver, heart, and other parts of the body.. One of the major features of Alagille syndrome is liver damage caused by abnormalities in the bile ducts. These ducts carry bile (which helps to digest …

Alagille syndrome - Wikipedia

    https://en.wikipedia.org/wiki/Alagille%27s_syndrome
    Alagille syndrome is a genetic disorder that affects primarily the liver and the heart.Problems associated with the disorder generally become evident in infancy or early childhood. The disorder is inherited in an autosomal dominant pattern, and the estimated prevalence of Alagille syndrome is 1 …Specialty: Medical genetics

Alagille syndrome: clinical perspectives

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4935120/
    Jun 30, 2016 · Alagille syndrome is an autosomal dominant, complex multisystem disorder characterized by the presence of three out of five major clinical criteria: cholestasis with bile duct paucity on liver biopsy, congenital cardiac defects (with particular involvement of the pulmonary arteries), posterior embryotoxon in the eye, characteristic facial features, and butterfly vertebrae.Cited by: 26

Alagille Syndrome - Symptoms, Causes, and Treatment

    https://liverfoundation.org/for-patients/about-the-liver/diseases-of-the-liver/alagille-syndrome/
    Alagille Syndrome is an inherited disorder that closely resembles other forms of liver disease seen in infants and young children. However, a group of unusual features affecting other organs distinguishes Alagille syndrome from the other liver and biliary diseases of infants.

Organizations: Are there good support groups for Alagille ...

    https://www.thinkgenetic.com/diseases/alagille-syndrome/organizations/7506
    Are there good support groups for Alagille syndrome? The Alagille Syndrome Alliance (www.alagille.org) is a good place to start if you are looking for support. They host events every three years to help families connect with each other.



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