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https://alsnewstoday.com/2016/09/22/respiratory-support-in-ALS-patients-may-decrease-quality-of-life
Sep 22, 2016 · Most patients with amyotrophic lateral sclerosis (ALS) develop respiratory problems in the advanced stage of their disease and are put on chronic ventilator support to improve their symptoms. Now a new study shows that despite improved respiration, the patients’ quality of life may worsen over time.
https://alsnewstoday.com/ventilation-2/
Most ALS patients who use IMV must be connected to the ventilator 24 hours a day. Its use, therefore, requires specially trained individuals who can provide support throughout the day. For example, secretions can block off the breathing tube or airways and need to be suctioned.
https://www.mypcnow.org/fast-fact/management-of-respiratory-failure-in-als/
During the day bi-level support can be used to alleviate respiratory muscle fatigue. The use of ‘intermittent positive pressure’ breathing machines has been reported to expand the lungs and reduce atelectasis. Full-time invasive ventilatory support is considered when non-invasive ventilation is no longer effective or tolerable.
https://als.ca/wp-content/uploads/2017/02/Ventilation-English.pdf
Over time, ALS impairs the muscles involved in breathing and coughing but does not impair the lungs. Impaired breathing function makes a person more prone to respiratory infections and failure and can cause shortness of breath, fatigue, increased mucous secre- tions, obstructive sleep apnea, hypoventilation and weakened coughs.
https://www.youralsguide.com/respiratory.html
Because a portable ventilator is more expensive than a bilevel, it may not always be necessary. However, the internal and external batteries allow for mobility, unlike a bilevel device. Your ALS Clinic team will discuss whether this is an appropriate piece of equipment for you.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6589990/
Jun 21, 2019 · IV may be considered to preserve quality of life in patients with ALS who want long-term ventilatory support – – Termination of NIV/IV, end-of-life management: Discuss the options for respiratory support and end-of-life issues if the patient has dyspnea, other symptoms of …Author: Johannes Dorst, Albert C. Ludolph
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