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https://www.aphasia.org/aphasia-resources/online-communities/
Online Aphasia communities and support groups. Aphasia Recovery Connection. Aphasia Recovery Connection (ARC) is an online support group. The group meets 24/7 on Facebook. They have a public Facebook page and a private group page, which you can request to join. There are regular chats that they organize using Oovoo (free video chatting software).
The National Aphasia Association has been providing information and support to people with aphasia and their caregivers for over twenty-five years. And we couldn't do it without the generous support of our donors. Please consider making a donation today! give support
https://anr.northwestern.edu/for-persons-with-aphasia-family-and-friends/
ABOUT APHASIA. Aphasia is a neurological disorder that affects the ability to understand and use language.. Primary Progressive Aphasia (PPA) is a form of dementia affecting only language for at least the first two years after symptom onset. Causes: Aphasia results from stroke, head injury, or any type of trauma that causes damage to the language networks of the brain.
http://www.strokengine.ca/wp-content/uploads/2015/02/Aphasia-Patient-Family-Information.pdf
Aphasia is stressful for the whole family. Some research shows that participating in educational sessions is beneficial for family members and friends, since it can help to gain awareness and knowledge about aphasia. For people who have aphasia, presenting extra educational videos does not ass additional treatment benefit beyond speech therapy.
http://www.stroke-network.com/articles/how-to-help-a-person-with-aphasia-express-themselves
The many different forms of aphasia are most apparent when we listen to what the person says. Meet three different stroke survivors - each with aphasia. All three are trying to ask a family member to take them to the mall for shopping.
https://itawc.com/communication-tips/
For people with severe aphasia, it is often helpful to have items like calendars, family photos, newspapers, menus and appointment books available. These can be used to assist the person with severe aphasia to get their message across.
https://www.med.unc.edu/ahs/sphs/card/files/2018/02/C4.pdf
Education for Patient and Family What is aphasia? Aphasia is a language problem o Difficulty with speaking o Difficulty with understanding o Difficulty with reading o Difficulty with writing Aphasia affects conversational interaction Aphasia does not affect intelligence This document is converted to aphasia-friendly print.
https://www.michiganspeechhearing.org/docs/A%20Caregiver%20Curriculum%20for%20Living%20with%20Partners%20with%20Aphasia.pdf
aphasia, it is imperative that family education is initiated at onset and is ongoing throughout rehabilitation •Speech-language pathologists play significant roles in fostering education and acceptance in clients and caregivers •Speech-language pathologists must be good listeners to support caregivers
https://www.aphasia.org/aphasia-resources/communication-tips/
Do not shield people with aphasia from family or ignore them in a group conversation. Rather, try to involve them in family decision-making as much as possible. Keep them informed of events but avoid burdening them with day to day details. Encourage independence and avoid being overprotective. For more aphasia resources check out our Helpful Materials
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