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Arthrogryposis Multiplex Congenita Support, Inc. 2018 Membership Form Nationally recognized as an Official 501 (c)(3) Non-Profit Organization All of our programs are fully funded by our AMC community.
https://rarediseases.org/organizations/arthrogryposis-multiplex-congenita-support-inc/
Description Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) is a 501(c)(3) voluntary organization whose mission is to provide and encourage more understanding and mutual support among anyone affected with the diagnosis of arthrogryposis multiplex congenita (AMC) and to create a higher standard of AMC awareness by means of conferences, meetings, and studies.
https://rarediseases.info.nih.gov/diseases/777/arthrogryposis-multiplex-congenita
Jan 12, 2015 · Arthrogryposis Multiplex Congenita Support, Inc offers an information page on Arthrogryposis multiplex congenita. Please click on the link to access this resource. The National Organization for Rare Disorders (NORD) has a report for patients and families about this condition. NORD is a patient advocacy organization for individuals with rare ...
https://www.guidestar.org/profile/20-8287870
With a condition so rare that only one in 3000 babies born have this neuromuscular disorder it’s easy to comprehend how alienated anyone with Arthrogryposis Multiplex Congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC Support group has helped bridge the gap with the power of the internet.
https://rarediseases.info.nih.gov/organizations/425
Synonyms: DA2B, Arthrogryposis multiplex congenita distal type 2B, Freeman Sheldon syndrome, variant, Arthrogryposis multiplex congenita distal type II with craniofacial abnormalities, Distal arthrogryposis type IIB, Freeman-Sheldon syndrome variant, Freeman Sheldon variant, Distal arthrogryposis type 2B
https://squareup.com/store/amcsupport
To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of Arthrogryposis Multiplex Congenita (AMC). To create a higher standard of AMC awareness by means of Conferences, Meetings, and Studies.
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