Arthrogryposis Support Uk

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TAG - The Arthrogryposis Group - The Arthrogryposis Group

    https://www.arthrogryposis.co.uk/
    If you have Arthrogryposis yourself and are not already a member, or if someone in your family or a friend has Arthrogryposis, why not consider becoming a member? You can become a member by completing our registration form here >> or email [email protected].

amcsupport

    https://amcsupport.org/
    To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of arthrogryposis multiplex congenita (AMC). To create a higher standard of AMC awareness by means of conferences, meetings, and studies.

Contact - The Arthrogryposis Group

    https://www.arthrogryposis.co.uk/contact
    Joining the Arthrogryposis Group as a UK Member Joining the Arthrogryposis Group as an Overseas Member I want to be a volunteer Becoming a Contact / Befriender Becoming a Volunteer Helping to Organise Events Personal Fundraising Corporate Fundraising Other (please specify in the comments box below) Other Enquiry

Arthrogryposis Contact

    https://contact.org.uk/advice-and-support/medical-information/conditions/a/arthrogryposis/
    It provides imformation and support to people born with Arthrogryposis and their families. They hold get togethers around the UK for all ages where members get together, chat and support each other in their day to day activities. TAG have also started up dedicated TAG clinics at numerous hospitals around the UK for children born with Arthrogryposis.

amcsupport » Find Support

    https://amcsupport.org/find-support/
    AMCSI  is here every step of the way, providing resources and guidance, annual conferences, mini-meetups and ways to connect with others online. Stay connected with the AMCSI community through our Facebook page. There are also support groups around the world. The Arthrogryposis Group (TAG) in …

Arthrogryposis multiplex congenita Genetic and Rare ...

    https://rarediseases.info.nih.gov/diseases/777/arthrogryposis-multiplex-congenita
    Jan 12, 2015 · Arthrogryposis Multiplex Congenita Support, Inc offers an information page on Arthrogryposis multiplex congenita. Please click on the link to access this resource. The National Organization for Rare Disorders (NORD) has a report for patients and families about this condition. NORD is a patient advocacy organization for individuals with rare ...

Information for schools about Arthrogryposis

    https://www.arthrogryposis.co.uk/media/Information%20for%20Schools.pdf
    Information for schools about Arthrogryposis What is Arthrogryposis (AMC)? Arthrogryposis Multiplex Congenita (AMC) is a term used to describe conditions where limitation in the movement of a joint or multiple joints is present at birth. Most children with Arthrogryposis are not intellectually impaired and do not have sensory problems or

amcsupport » About Arthrogryposis

    https://amcsupport.org/about-arthrogryposis/
    Arthrogryposis multiplex congenita (AMC), commonly referred to as arthrogryposis, is the medical term describing the presence of multiple congenital contractures. The word arthrogryposis (arthro, from Greek meaning joint, gryp meaning curved, posis meaning fixed) refers to …

Arthrogryposis - Wikipedia

    https://en.wikipedia.org/wiki/Arthrogryposis
    Arthrogryposis multiplex congenita (AMC), or simply arthrogryposis, describes congenital joint contracture in two or more areas of the body. It derives its name from Greek, literally meaning "curving of joints" (arthron, "joint"; grȳpōsis, late Latin form of late Greek grūpōsis, "hooking").Children born with one or more joint contractures have abnormal fibrosis of the muscle tissue causing ...Specialty: Medical genetics



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