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Oct 29, 2019 · Batten Disease Support and Research Association (BDSRA) is a GuideStar Exchange Silver Participant
https://bdsra.org/what-is-batten-disease/
Batten Disease Support and Research Association (BDSRA) is a GuideStar Exchange Silver Participant
https://rarediseases.info.nih.gov/organizations/315
Batten Disease Support and Research Association (BDSRA) Batten Disease Support and Research Association (BDSRA) 2780 Airport Drive, Suite 342 Columbus, OH 43219 Toll ... Enfermedad de Batten Neuronal ceroid lipofuscinosis. Synonyms: Batten disease, NCL Neuronal ceroid lipofuscinosis 10 ...
http://www.battens.org.au/what-batten-disease
Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood. Batten disease is named after the British paediatrician who first described it in 1903. It is one of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs).
https://rarediseases.org/organizations/batten-disease-support-and-research-association/
The Batten Disease Support and Research Association (BDSRA) is a 501(c)(3) voluntary, non-profit organization dedicated to promoting the civil and human rights of people with Batten disease. Batten disease, an extremely rare inherited disorder, is a progressive degenerative neuro metabolic disease characterized by gradual intellectual deterioration, seizure episodes, progressive movement (motor) …
https://beyondbatten.org/understanding-batten/living-with-batten/
The Batten Disease Support and Research Association (BDSRA) is an international support and research organization for families of children and young adults with an inherited neurological degenerative disease known as Batten disease. The Batten Disease Family Association...
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Batten-Disease-Fact-Sheet
Aug 13, 2019 · Batten disease is the common name for a broad class of rare, fatal, inherited disorders of the nervous system also known as neuronal ceroid lipofuscinoses, or NCLs. In these diseases, a defect in a specific gene triggers a cascade of problems that interferes with a …
https://www.webmd.com/children/batten-disease
Some people with Batten disease get physical or occupational therapy to help them function. Scientists continue to research possible treatments and therapies. Scientists continue to research ...
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