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The Congenital Adrenal Hyperplasia Support Group Australia (CAHSGA) was formed in 1985. We are working to improve knowledge and services for those affected by CAH. We are a small not for profit group run entirely by volunteers.
http://www.cah.org.au/education/about-cah/
Congenital adrenal hyperplasia (CAH) is an inherited group of disorders characterised by incorrect amounts of adrenal gland hormones. CAH is a genetic disorder, caused by an insufficiency of the particular enzymes that help convert cholesterol into the adrenal gland hormones. There is no cure, but the condition can be managed with medications.
http://www.cah.org.au/membership/
Joining as a member of the Congenital Adrenal Hyperplasia Support Group Australia Inc. (CAHSGA Inc.) is beneficial for many reasons:. Quarterly member newsletters including, current information on treatment options & products; Notification of events & seminars throughout Australia
http://www.cah.org.au/contact-us/
PO Box 100 Mitcham Vic 3132 Australia. Contact Form. Your Name *: Your Email: * Desired Contact *: Caron Brindley (Acting President)
http://www.cah.org.au/links/
Web Link; 1 NZ CAH Support Group NZ CAH Support Group: 2 CARES Foundation CARES Foundation: 3 Adrenal Hyperplasia Network Adrenal Hyperplasia Network : 4 CLAN - Caring and Living as Neighbours CLAN is dedicated to the dream that all children living with chronic health conditions in resource-poor countries of the world will enjoy a quality of life on par with that of their neighbours in ...
http://www.cah.org.au/education/book-reviews/
This exceptional new book is an invaluable manual for anyone affected by CAH. Although entitled a “Parents’ Guide” it would also be well received by both adolescents and adults with CAH. This 282 page book is co-authored by the mother of a CAH son and world renowned Endocrinologist who has shown a special interest in CAH, Dr Scott Rivkees.
http://www.cah.org.au/education/personal-stories/
It is not without the support of our family, friends and other CAH families (found through the CAH Support Group) that we have made it to where we are today. We do not doubt that there will be some tough times ahead… We do not doubt that Eliza* will have days when she won’t want to take her meds or cooperate with us…
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