Craniosynostosis Support Forum

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Cranio Care Bears

    https://craniocarebears.org/
    Giving Support & Encouragement through loving care packages. Our mission is to spread awareness, support & compassion through loving care packages to families of children facing surgery for craniosynostosis. Our care packages include items for the child & family to relieve the stress accompanying this very serious surgery.

Support Pages - CAPPSKIDS

    https://www.cappskids.org/craniosynostosis-support/
    Sometimes we all need a little extra support. Cappskids.org launched it’s model in 1999. Facebook did not exist and Google was just a baby in it’s beta phase. Internet was still dial-up, slow speed and often unreliable. Where did parents go when they thought something was wrong? Cappskids.org introduced a support page where families could […]

Craniosynostosis symptoms, treatments & forums ...

    https://www.patientslikeme.com/conditions/craniosyntosis
    Craniosynostosis: Find the most comprehensive real-world symptom and treatment data on craniosynostosis at PatientsLikeMe. 6 patients with craniosynostosis experience fatigue, insomnia, depressed mood, pain, and anxious mood.

Craniosynostosis forum Diseasemaps

    https://www.diseasemaps.org/craniosynostosis/forum/
    Craniosynostosis forum - Questions about Craniosynostosis - Ask a question and get answers from other users. Discover the new Craniosynostosis forum. Advise and help others. Help us to help more people ... Get support from others. Ask for help and help others. 0. 0. Post New Thread.

Craniosynostosis & Plagiocephaly Support Groups Online ...

    https://www.dailystrength.org/group/craniosynostosis-plagiocephaly
    Craniosynostosis & Plagiocephaly Support Group. Craniosynostosis is a medical condition in which some or all of the sutures in the skull of an infant close too early, causing problems with normal brain and skull growth. Plagiocephaly is a condition characterized by an asymmetrical distortion (flattening of one side) of the skull.

Craniosynostosis Specialist Centers - CAPPSKIDS

    https://www.cappskids.org/
    Dr. David Daniels is a Pediatric Neurosurgeon and Assistant Professor of Neurosurgery and Pediatrics at the Mayo clinic College of Medicine and Senior Associate Consultant at the Mayo Clinic Children\'s Center and Mayo Clinic Children\'s Hospital in Rochester, Minnesota.

Craniosynostosis

    http://www.faces-cranio.org/Disord/Cranio.htm
    Support organization for parents of children with craniosynostosis. Provides an online support group, newsletters, resources, and hospital care packages. Back to top. This plagiocephaly website www.plagiocephaly.org has a number of links to plagiocephaly and other craniosynostosis websites. The Craniofacial Center

Sagittal craniosynostosis... - September 2015 Babies ...

    https://community.whattoexpect.com/forums/september-2015-babies/topic/sagittal-craniosynostosis-27.html
    Cranio kids- craniosynostosis support. Reply Close. r. rlr182 @Mrsmichael86. The Facebook support group is awesome! My son had endo for Sagittal with springs (no helmet) on 12/14 at CHOP in Philly. I was a mess beforehand too (those last 24 hours are the …

craniosynostosis support for parents and guardians Public ...

    https://www.facebook.com/groups/16254297457
    craniosynostosis support for parents and guardians has 834 members. When the bones in the skull fuse to early,so they have to take a piece of bone out...

Craniosynostosis 32 years later DailyStrength

    https://www.dailystrength.org/group/craniosynostosis-plagiocephaly/discussion/craniosynostosis-32-years-later
    Nov 19, 2007 · Craniosynostosis & Plagiocephaly Support Group. Craniosynostosis is a medical condition in which some or all of the sutures in the skull of an infant close too early, causing problems with normal brain and skull growth. Plagiocephaly is a condition characterized by an asymmetrical distortion (flattening of one side) of the skull.



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