Find all needed information about Cystic Fibrosis Family Support. Below you can see links where you can find everything you want to know about Cystic Fibrosis Family Support.
https://www.friendsandfamiliesofcf.org/wp/
Cystic fibrosis is an inherited disease that affects nearly 30,000 children and adults in the United States and remains a chronic, life-threatening disease. Friends & Families of Cystic Fibrosis values the importance of volunteers coming together to help those suffering in our community.
https://www.cff.org/Life-With-CF/Caring-for-a-Child-With-CF/Parent-and-Guardian-Guidance/
As the parent of an infant with CF, you may have many questions and may be feeling a range of emotions. In addition to comprehensive care and medical support, the Cystic Fibrosis Foundation offers the "Pathways to Lifelong Health" video series for parents of babies recently diagnosed with CF.
http://med.stanford.edu/cfcenter/services/SupportingLovedOnes.html
Cystic fibrosis (CF) is one of the most common and serious genetic diseases in America. CF affects the respiratory (lungs), pancreatic, and gastrointestinal (GI) systems. It can also affect the sinuses, liver, spleen, and reproduction. It is a chronic disease that currently has no cure. In the 1940 ...
https://cysticfibrosisnewstoday.com/caring-for-a-family-member-with-cystic-fibrosis/
Caring for a Child with Cystic Fibrosis: Identifying the Signs. Being an inherited disease, cystic fibrosis runs in the family, but in some cases families may not know it and the diagnosis may be a shock. From the start and during the entire process of caring for a CF patient, knowing what to expect and what is not normal can be helpful.
http://cfri.org/education-support/
CFRI seeks to provide the national cystic fibrosis (CF) community with current information about cystic fibrosis through educational programs and resources, while providing diverse psychosocial support services to the CF community. These programs help educate and provide multi-faceted support to those affected by CF, and include the following.
https://www.cff.org/Life-With-CF/Daily-Life/Emotional-Wellness/Coping-While-Caring-for-Someone-With-Cystic-Fibrosis/
Coping While Caring for Someone With Cystic Fibrosis . Caring for anyone with a long-term disease -- especially if that person is your child -- is stressful. Parents of children with cystic fibrosis are more likely to experience anxiety, depression, or both compared to parents in general.
https://clairesplacefoundation.org/programs/outreach-program/
In an effort to support our community and the newly diagnosed, we have compiled the following list of valuable Community Resources: Cystic Fibrosis Foundation Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure.
http://www.cfsociety.org/
CYSTIC FIBROSIS (CF) Cystic Fibrosis (CF) is a severe, life-threatening disease that causes devastating damage to the lungs and digestive system. Thick mucus overwhelms the lungs' airways, causing lung damage and making it increasingly hard to breathe, leading to critical lung infections.
https://cffamilyconnection.org/links/links-aid/
Cystic Fibrosis HealthWell Foundation – The HealthWell Foundation provides financial assistance to eligible individuals to cover coinsurance, copayments, health care premiums and deductibles for certain medications and therapies. This link goes to their page that deals specifically with Cystic Fibrosis.
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