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https://www.cancercompass.com/message-board/message/all,64110,0.htm
On Jan 26, 2012 2:15 AM Amasterson wrote: . My 26 year old beautiful daughter, 5'11" swimmer and waterpolo player was first dignosed at 21 with a large painfull mass identified as a desmoid fibromatosis tumor in her right hamstring area, ultimately the tumor was remove and again resected due to the margins not being clear.
https://www.diseasemaps.org/desmoid-tumor/forum/
Desmoid Tumor forum - Questions about Desmoid Tumor - Ask a question and get answers from other users. Discover the new Desmoid Tumor forum. Advise and help others. Help us to help more people ... Useful Desmoid Tumor resources. Blogs, websites, support groups, apps... 0. Add resource.
https://www.mayoclinic.org/diseases-conditions/desmoid-tumors/symptoms-causes/syc-20355083
Nov 14, 2018 · Desmoid tumors are noncancerous growths that occur in the connective tissue. Desmoid tumors most often occur in the abdomen, arms and legs. Another term for desmoid tumors is aggressive fibromatosis. Desmoid tumors that grow can extend to involve nearby tissues and organs, causing signs, symptoms and complications.
http://www.rare-cancer.org/forum/viewtopic.php?f=143&t=4100
Rare Cancer Support Forum. Patients & Caregivers share support; treatment, physician, & facility information; and personal experiences. ... Agressive fibromatosis / Desmoid Tumour. Please read, and agree to, the Agreement Announcement prior to posting your personal story. ... The contents of this forum, and the Rare Cancer Alliance website ...
https://www.facebook.com/groups/thedesmoidian/
Welcome to The Desmoidian. This is a closed group where Desmoid Tumor patients alike can share their stories and offer/receive support with fellow Desmoidian’s in discussions that are private and...
https://www.cancer.gov/pediatric-adult-rare-tumor/rare-tumors/rare-soft-tissue-tumors/desmoid-tumor
Desmoid tumors are also known as aggressive fibromatosis or desmoid-type fibromatosis. A desmoid tumor can occur anywhere in the body since connective tissue is found everywhere in your body. Desmoid tumors are often found in the abdomen, as well as the shoulders, upper arms, and thighs. Desmoid tumors are benign, which means they are not cancer.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3759201/
Aug 25, 2011 · Fibromatosis, or extra-abdominal desmoid tumor, is a benign disease which often has an aggressive clinical course that can be difficult to treat. We performed a retrospective review of 16 patients (12 females and four males) with a mean age of 34.2 years ...Cited by: 5
https://sarcoma.org.uk/events/2017/02/desmoid-support-group
The first meeting for desmoid patients and carers will be held in Bath on Saturday 4 February 2017. The event is free and open to anyone affected by desmoid-type fibromatosis (desmoid tumour). No registration required, just come along. Sam, a Sarcoma Specialist Nurse …
https://ghr.nlm.nih.gov/condition/desmoid-tumor
Oct 29, 2019 · A desmoid tumor is an abnormal growth that arises from connective tissue, which is the tissue that provides strength and flexibility to structures such as bones, ligaments, and muscles.Typically, a single tumor develops, although some people have multiple tumors. The tumors can occur anywhere in the body. Tumors that form in the abdominal wall are called abdominal desmoid tumors; those …
Medical therapy can cause desmoid tumors to decrease in both size and cellularity; however, even in the absence of a noticeable size decrease, a decrease in the degree of celluarlity alone is often associated with improvement in symptoms. The most common drugs used to treat desmoid tumors are Sorafenib, Doxorubicin, Methotrexate and Tamoxifin.
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