Find all needed information about Digeorge Syndrome Family Support. Below you can see links where you can find everything you want to know about Digeorge Syndrome Family Support.
https://22qfamilyfoundation.org/living-22q/22q-support-groups-links
for individuals with 22q 11.2 deletion syndrome. Our mission is to connect families and individuals affected by 22q (Velo-Cardio-Facial syndrome, DiGeorge Syndrome) and related disorders. Our son Jonah was diagnosed with 22q 11.2 deletion syndrome when he was 21 months old and is our inspiration for starting this support group.
https://www.mdjunction.com/digeorge-syndrome
The DiGeorge Syndrome Support Group is a community of patients, family members and friends dedicated to dealing with DiGeorge Syndrome, together.
http://www.22q.org/resources-for-22q/for-families/parent-support/
Parent Support. Home » Resources » For Families » Parent Support. 22q General Information. General information about 22q. Read more. Development & Education. Development and Educational coordination tips to follow. Read more. Behavior & Mental Health. Understanding and working with challenges throughout the lifespan.
https://www.cincinnatichildrens.org/service/t/22q-vcfs/families
The 22Q-VCFS Center at Cincinnati Children’s suggests these resources for families seeking information or support. The Tri-State 22Q-VCFS Family Support Network A family support network providing education, support and social activities for individuals and families affected by 22Q-VCFS.
https://www.geneticsupport.org/genetics-pregnancy/commonly-tested-for-prenatal-conditions/microdeletion-syndromes/22q11-2-deletion-syndrome/
People with DiGeorge syndrome can have loving relationships with friends and family, go to school with their peers, and are interested in learning about a variety of topics. As adults, many individuals work in jobs they find meaningful, and are often able to live independently or semi-independently.
https://22qfamilyfoundation.org/living-with-22q/22q-stories/
We have met many wonderful children with 22q. We are grateful to the families who have come forward and shared their stories with us, to gain understanding and shed light on some of the milestones, setbacks, and steps of dealing with the disorder.
https://www.nhs.uk/conditions/digeorge-syndrome/
In these cases, there's usually no family history of DiGeorge syndrome and the risk of it happening again to other children is very small. In around 1 in 10 (10%) cases, the 22q11 deletion is passed on to a child by a parent who has DiGeorge syndrome, although they may not realise they have it if it's mild.
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