Find all needed information about Disease Genetic Group Support. Below you can see links where you can find everything you want to know about Disease Genetic Group Support.
https://rarediseases.info.nih.gov/guides/pages/120/support-for-patients-and-families
Support for Patients and Families Individuals and families affected by rare medical conditions might look to nonprofit support and advocacy groups for different reasons. Some may want to find other people who understand how having the condition affects their lives.
https://www.inspire.com/groups/rare-disease-and-genetic-conditions/
The Genetic Alliance Rare Disease & Genetic Conditions Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by Genetic Alliance, an Inspire trusted partner. More about this community
https://www.who.int/genomics/public/patientsupport/en/
Provides listing of disease-specific support groups, information on multiple diseases, information on health maintenance, tests and treatment, and a broad New Zealand health services directory. Genetics Interest Group (UK) Offers general information on genetic diseases along with information on available genetic services in the UK.
https://www.diseaseinfosearch.org/disease/2071/support
Are you looking for disease information or support? Simply type in the name of a disease or condition and Disease InfoSearch will locate quality information from a database of more than 13,000 diseases and thousands of support groups and foundations.
https://www.genome.gov/11510370/genetic-counseling-support-and-advocacy-groups-online
Information on genetic conditions and birth defects for professionals, educators and individuals, including national and international advocacy and support groups. Comprehensive list of resources organized by disease/condition.
https://genetic.org/im-medical-professional/support-groups/
Support groups are a demonstrated way for parents and adults to gain knowledge, acceptance and emotional support after discovering they are affected by an X and Y variation. AXYS maintains a number of affiliated support groups, and physicians are especially encouraged to suggest them to newly diagnosed individuals or their families.
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