Find all needed information about Dravet Syndrome Support Uk. Below you can see links where you can find everything you want to know about Dravet Syndrome Support Uk.
https://www.dravet.org.uk/
Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of those affected by Dravet syndrome through support, education and medical research. Read More. Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of those affected by Dravet syndrome through support, education and medical research.
https://www.dravet.org.uk/about-us/
Dravet Syndrome UK was created in 2008 by a group of parents who came together looking for support, resources and information relating to a rare, little known neurological condition called Dravet Syndrome.
https://www.dravet.org.uk/families/
Welcome to the area of our website that is dedicated to families. Here you can find useful information and get practical support in navigating the day to day challenges of living with Dravet Syndrome. At DSUK, we’re here to guide you through these challenges, provide support and reassure you that you and your family are not alone.
https://www.dravet.org.uk/partners/
Our Charity Sponsor - XTX Markets. Many thanks to our main sponsor, XTX Markets for their continued support. Without their funding, we would not be able to provide the range of services that make such a difference to families living with Dravet Syndrome (including the grants and assistance we provide for families).
https://www.dravetfoundation.org/dsf-family-network/
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome. These are a great resource for families to ask questions and find support. To join, please follow these steps:
http://beta.charitycommission.gov.uk/charity-details/?regid=1128289&subid=0
Jan 31, 2018 · 1) to fund research into dravet syndrome and other related genetic sodium channel epilepsy's to benefit sufferers of dravet syndrome and their families. 2) TO ADVANCE THE EDUCATION OF THE MEDICAL COMMUNITY IN THE SUBJECT OF DRAVET SYNDROME, THEREFORE PROMPTING ACCURATE AND EARLY DIAGNOSIS AND BENEFITING SUFFERERS OF DRAVET SYNDROME …
https://www.epilepsy.com/sites/core/files/atoms/files/Dravet%20Syndrome%20Fact%20Sheet.pdf
DRAVET SYNDROME FACT SHEET . WHAT IS DRAVET SYNDROME? Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of epilepsy for which there is currently no cure. Seizures begin in the first year of life in an otherwise typically developing infant.
https://www.dravetfoundation.org/what-is-dravet-syndrome/
Dravet syndrome is a rare, catastrophic, lifelong form of epilepsy that begins in the first year of life with frequent and/or prolonged seizures. Previously known as Severe Myoclonic Epilepsy of Infancy (SMEI), it affects 1:15,700 individuals, 80% of whom have a …
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