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https://www.dinet.org/forums/forum/1-dysautonomia-discussion/
Feb 10, 2018 · Dysautonomia Awareness Month Shop DINET Forum & Community Forums Become a forum member Guidelines Assistance Member Stories Information for Caregivers Activity All Activity Search Online Users Calendar Shop DINET Leaderboard
https://www.dysautonomiasupport.org/
Dysautonomia refers to a spectrum of neurological disorders that involve the autonomic nervous system (ANS). A hallmark symptom of dysautonomia due to sympathetic failure is a fall in blood pressure during standing or neurogenic orthostatic hypotension (nOH).
http://www.dysautonomiainternational.org/page.php?ID=24
We know how valuable it can be for patients and caregivers to connect with others in their own community who are facing similar challenges. That is why we have compiled the following list of volunteer-led local dysautonomia support groups. Please note that Dysautonomia International cannot verify the accuracy of information posted on the groups.
Dysautonomia is a term used to describe abnormal functioning of the autonomic nervous system. Dysautonomia means dysregulation of the autonomic nervous system. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates.
https://www.inspire.com/groups/dysautonomia-support-network/
A support and discussion forum for dysautonomia and related issues, including coping, autoimmune disorders, Lyme disease, EDS, and neuropathy. ... Dysautonomia Support Network is a patient support, education and empowerment network for men and women living …
https://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266
This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
https://www.rarediseasesnetwork.org/cms/autonomic/Get-Involved/Patient-Advocacy
Patient Advocacy ... maintaining a moderated online forum where patients can discuss topics related to dysautonomia, directing patients to support groups in their area and surveying physicians worldwide to include on their Website's physician list. ... non-profit organization committed to dysautonomia Awareness, Advocacy and Advancement. Their ...
Connect With Others on Our Forum.. The DINET Forum allows you to meet others living with similar symptoms and experiences. With almost 6,000 members our community provides you with the opportunity to exchange tips and information, share your story, seek and offer support and encouragement and much more!
https://www.dailystrength.org/group/dysautonomia
Explore DailyStrength's Dysautonomia support groups and meet others who are facing Dysautonomia related issues ... Dysautonomia Community Group. For all types of Dysautonomia to learn and understand more about it. 20 Members. 16 Posts. 0 Online. JOIN. Brain & Nervous System Dysautonomia Support Group. New Post. 2/22/16 How do I prep for a ...
https://www.facebook.com/groups/DysautonomiaSOS/
Welcome to the Dysautonomia Support Group! Our ground rules are simple: be nice, no bullying, no spamming, no sales, and no fundraising. Posts linking to other sites or surveys that collect personal...
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