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The EA/TEF Family Support Connection was formed by and for families of children born with (Esophageal Atresia and Tracheoesophageal Fistula) EA/TEF and the medical professionals who treat them. We are dedicated to providing educational resources as well as emotional and practical support to aid in the daily care of our medically fragile children.
https://rarediseases.org/organizations/eatef-child-and-family-support-connection-inc/
The EA/TEF (Esophageal Atresia and Tracheoesophageal Fistula) Child and Family Support Connection is a nonprofit organization dedicated to providing educational resources as well as emotional and practical support to aid in the daily care of children affected by esophageal atresia or tracheoesophageal fistula.
https://www.eatef.org/node/7
The EA/TEF Family Support Connection is about families caring for one another, putting a smile on a child's face, and making a positive impact on someone's life. We do not give medical advice. Instead, we provide an ear for listening, a sounding board for ideas, a forum for questions, a shoulder to cry on and, most importantly, hope.
https://www.facebook.com/eatef.org
The EA/TEF Family Support Connection was formed by and for families of children born with (Esophageal Atresia and Tracheoesophageal Fistula) EA/TEF and the medical professionals who treat them. We are dedicated to providing educational resources as well as emotional and practical support to …Followers: 2.3K
https://www.eatef.org/node/1
Their shared experiences were made easier with the support of others facing similar situations and asking similar questions. The network of information and support which they created was the seed for the EA/TEF Family Support Connection. Our original intention was to just form a local support group for Chicago-land area families.
https://pedsurg.ucsf.edu/conditions-procedures/esophageal-atresia.aspx
Most commonly with esophageal atresia, this connection forms off of the lower (distal) pouch; however, it can also form off of the upper pouch or both, and in some cases, a fistula will form without atresia. ... Parent support organizations EA/TEF Child and Family Support Connection, Inc. 111 W. Jackson Blvd., Suite 1145 Chicago, Ill. 60604 ...
https://www.eatef.org/blog
Someone would like to share some anonymous words of encouragement. Thanks, anonymous! If you'd like to share something, you can email me at [email protected], or send a private facebook message to EA/TEF Family Support Connection. "My spouse, born in the early 1980s, was born with a TEF.
http://www.eatef.org/node/3
The cause of esophageal atresia, like that of most birth defects, is unknown. An infant born with ea/tef may initially appear to swallow normally. However, the first signs of ea/tef may be the presence of tiny, white, frothy bubbles of mucus in the infant’s mouth and sometimes in the nose as well.
https://rarediseases.org/rare-diseases/esophageal-atresia-andor-tracheoesophageal-fistula/
EA often occurs in association with a tracheoesophageal fistula (TEF), which is an abnormal passage or connection (fistula) between the esophagus (usually the lower) and the trachea (windpipe). The trachea is the tube that runs from the voice box in the throat to the …
https://www.chop.edu/conditions-diseases/esophageal-atresia-and-tracheoesophageal-fistula-eatef
Esophageal atresia and tracheoesophageal fistula ... For babies with esophageal atresia — and not TEF — surgery includes connecting the two ends of the esophagus to form a functioning channel between the back of the throat and the stomach. ... Support staff will help your family coordinate additional services, such as home nursing visits ...
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