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https://www.ehlers-danlos.org/
Ehlers-Danlos Support UK mentioned in parliamentary debate. Following Healthwatch Calderdale’s report into the experiences of adults with hypermobility syndromes published in July, the MP for Calder Valley, Craig Whittaker tabled a debate in parliament on Monday 7 October highlighting the findings of the report and calling for action.
https://www.ehlers-danlos.org/support/
Support is in the very fabric of what we do, so much so we even put it in our name. We run the only helpline in the UK specifically to help anybody touched by EDS and at a local level, our network of volunteers run local support groups and regional facebook pages to help families, friends and patients.. More regularly we are hearing stories from members about the difficulty they are having ...
https://www.ehlers-danlos.org/support/support-groups/
Breaking down barriers. Breaking down Barriers is a project EDS UK have been working on since January 2017. Funded by the Sylvia Adams Trust, the project aims to extend genetic services to the south Asian community, who are known to have a higher prevalence of the Ehlers-Danlos Syndromes.
https://www.facebook.com/EhlersDanlosUK
Ehlers-Danlos Support UK, Borehamwood. 36,865 likes · 3,439 talking about this · 93 were here. EDS UK, a charity raising awareness of Ehlers-Danlos Syndrome, supporting people & research. Become a...Followers: 37K
https://www.ehlers-danlos.com/support-groups-uk/
Sussex Ehlers-Danlos Syndrome and Hypermobility support community group actively supports members with or without EDS/HSD diagnosis in Sussex. We will run Pilates classes, craft sessions, run informational and professional speaking events, campaign and advocate on accessibility to transport from trains and ferries to aviation.
https://www.ehlers-danlos.com/support-groups/
Support Groups and Charities We are about to start updating our support group network, and have been trying to reach groups through available contact information. Please watch your email or this page for information on being part of the new listings.
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