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Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. . The motto of the Marfan Europe Network is: “TOGETHER WE CAN!”
https://www.marfan.eu/about-us/
Marfan Europe Network is a coalition of support organisations concerned with people affected by Marfan syndrome or related disorders. It was founded in 1991 and originally named “European Marfan Support Network” (EMSN).It was renamed in 2014 to “Marfan Europe Network” (MEN). Marfan organisations within Europe form a network to support and encourage each other by exchanging and sharing ...
https://acronyms.thefreedictionary.com/European+Marfan+Support+Network
European Marfan Support Network; European Mariculture Society; European Marine and Polar Science; European Marine Biological Association; European Marine Biology Symposium; European Marine Casualty Information Platform; European Marine Energy Centre; European Marine Equipment Council; European Marine Sand and Gravel Group; European Marine STEP
http://www.malattieraresardegna.it/resources/InvitationEMSN2013.pdf
the European Marfan Support Network into the future! The EMSN does not hold the rights anymore to use the EMSN logo we have been using. Therefore our network needs a new logo and we hope to have some suggestions ready for the assembly to discuss. We also have to plan for future meetings, so please let us know if you are
Marfan syndrome is a life-threatening genetic condition, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related conditions. Knowing the signs of these conditions can save lives. Learn more.
https://www.researchgate.net/publication/8040874_Marfan_Syndrome_in_Europe
Marfan patient support groups included in the European Marfan Network, and the medical ethical committees of the Ghent Univer- sity Hospital and the Academic Medical Center in Amsterdam.
https://www.marfan.org/get-involved/connect-community/local-community
Other Ways to Get SupportPhone Support Groups Find a Mentor Become a Mentor Join our Online Community Ask Our Help Local Support & Groups The Marfan Foundation Skip to main content
https://www.acronymfinder.com/European-Marfan-Support-Network-(est.-1991%3b-support-organization)-(EMSN).html
How is European Marfan Support Network (est. 1991; support organization) abbreviated? EMSN stands for European Marfan Support Network (est. 1991; support organization). EMSN is defined as European Marfan Support Network (est. 1991; support organization) somewhat frequently.
https://www.abbreviations.com/EMSN
Looking for the definition of EMSN? Find out what is the full meaning of EMSN on Abbreviations.com! 'Extended Medicare Safety Net' is one option -- get in to view more @ The Web's largest and most authoritative acronyms and abbreviations resource.
http://www.marfan.de/berichte/201-symposium-des-medizinisch-genetischen-zentrums-in-muenchen.html
a quick intro for the ones who don't know me: I am Lauriane Janssen, and I am a member of the Belgian Wallonian Marfan Association (ABSM, www.marfan.be). Since last year, I am a member of the board of the EMSN (European Marfan Support Network) and I'm the "young adult group representative" or something like that :)
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