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https://www.bladderexstrophy.com/
Bladder exstrophy is a rare birth defect in which the badder has not formed correctly at birth. A-BE-C is working to make the highest standards of treatment available to …
California Bladder Exstrophy Support Team The California Bladder Exstrophy Suppor t Team (California B.E.S.T.) is an organization of families, individuals, and medical professiona ls whose lives are touched by bladder exstrophy and related conditions. We are an ever-growing support network throughout California...and beyond!
https://www.bladderexstrophy.com/news/
The Association for the Bladder Exstrophy Community (A-BE-C) is committed to ensuring that all who are affected by bladder exstrophy have the opportunity to realize their greatest life purpose and potential.
http://www.childrenshospital.org/centers-and-services/programs/a-_-e/bladder-exstrophy-program
Psychosocial support for bladder exstrophy. Psychosocial support is a critical component of the Exstrophy Program. Our team partners with children and their families along the continuum of care to ensure your needs are met. These needs may focus on care coordination, coping, orientation with hospital services, identification of community ...
https://www.facebook.com/AssociationfortheBladderExstrophyCommunity
Association for the Bladder Exstrophy Community, West Allis, WI. 2.9K likes. The Association for the Bladder Exstrophy (A-BE-C) exists to ensure that all children born with bladder exstrophy have the...4.6/5(32)
https://en.wikipedia.org/wiki/Bladder_exstrophy
Bladder exstrophy is a congenital anomaly that exists along the spectrum of the exstrophy-epispadias complex, and most notably involves protrusion of the urinary bladder through a defect in the abdominal wall. Its presentation is variable, often including abnormalities of the bony pelvis, pelvic floor, and genitalia.The underlying embryologic mechanism leading to bladder exstrophy is unknown ...Specialty: Medical genetics
http://www.childrenshospital.org/conditions-and-treatments/conditions/b/bladder-exstrophy-and-epispadias
The Boston Children's Hospital Bladder Exstrophy Program is dedicated to providing exceptional pediatric care. Our team include physicians, nurses, social workers and child life specialists who will care and support you and your child at every step from diagnosis through treatment, and even after your child returns home. We are always here to ...
https://rarediseases.info.nih.gov/diseases/6398/exstrophy-of-the-bladder
Feb 01, 2010 · The prevalence at birth for the EEC is reported at 1/10,000. As epispadias (E), classic bladder exstrophy (CEB) and cloacal exstrophy (EC) are now recognized clinical variants of the same spectrum, accurate epidemiological data on E/EC/CEB are no longer available.
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