Find all needed information about Fanconi Anaemia Support. Below you can see links where you can find everything you want to know about Fanconi Anaemia Support.
https://www.fanconihope.org/
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
https://www.fanconi.org/explore/family-support-group
Family Support Group. It’s important to remember that although FA is a rare disease, you are not alone. There is a whole community of people with FA and their families that face some of the same challenges as you. FARF moderates a private Facebook support group that allows adults with FA and parents of children with FA to exchange questions ...
http://www.fanconi.org/explore/support-services
International Fanconi Anemia Treatment and Testing Resource Guide: includes detailed information on treatment and testing centers, including addresses, physicians, and services offered. Family Support Group: a private Facebook support group allows adults with FA and parents of children with FA to exchange questions and information. An ...
https://www.fanconi.org/explore/international-support
A worldwide effort. Though FARF is based in the United States, individuals with FA come from every continent. In an effort to recognize and respond to the global reach of this disease, we are pleased to partner informally with a number of international groups providing fundraising and support for families affected by Fanconi anemia.
https://www.fanconi.org/explore/international-fa-support-grants
The Fanconi Anemia Research Fund (FARF) is the world leader in advancing research for better treatments and a cure for Fanconi anemia (FA). Founded in 1989 by parents Lynn and David Frohnmayer, FARF has supported more than 230 grants to …
Our mission is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Our mission is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. About Us. 2018 Numbers at a glance. 63 New ...
https://contact.org.uk/advice-and-support/medical-information/conditions/f/fanconi-anaemia/
www.fanconi.org.uk. The Group is a Registered Charity in England and Wales No. 1126894. It provides information and support to families affected by Fanconi anaemia and clinicians with an interest in the condition. The Group supports a UK Fanconi Anaemia National Registry and provides grants for research. Group details last updated August 2014.
https://www.nhlbi.nih.gov/health-topics/fanconi-anemia
Fanconi anemia genes have multiple roles. We support research to understand newly identified ways Fanconi anemia genes keep cells healthy and why mutations in these genes can lead to cancer. Many kinds of gene mutations cause Fanconi anemia. We continue to support work focused on discovering new mutations in the Fanconi anemia genes.
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