Fragile X Support Services

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The National Fragile X Foundation Fragile X Syndrome

    https://fragilex.org/
    The National Fragile X Foundation supports families living with Fragile X through community, awareness and education, and research. We provide help for today and hope for tomorrow. Together we can do more. Learn more about how we can help.

Financial Resources for Fragile X

    https://fragilex.org/wp-content/uploads/2012/08/Financial-Resources-for-Individuals-with-Fragile-X-Syndrome2012-Oct.pdf
    The Fragile X Clinical & Research Consortium was founded in 2006 and exists to improve the delivery of clinical services to families impacted by any Fragile X-associated Disorder and to develop a research infrastructure for advancing the development and implementation of new and improved treatments.

What is Fragile X Syndrome (FXS)? CDC

    https://www.cdc.gov/ncbddd/fxs/facts.html
    Connect with a Community Support Network (CSN) external icon at the National Fragile X Foundation. CSNs are organized and run by parent volunteers and provide support to families. References. Hunter J, Rivero-Arias O, Angelov A, Kim E, Fotheringham I, Leal J. Epidemiology of fragile X syndrome: a systematic review and meta-analysis.

Fragile X Syndrome: Symptoms, Causes, Diagnosis, and Treatment

    https://www.webmd.com/children/what-is-fragile-x-syndrome
    Fragile X Syndrome is an inherited disorder caused by genetics that affects a child's learning, behavior, appearance, and health. Learn more about the symptoms, causes, diagnosis, and treatment of ...

Fragile X Association of Australia

    https://www.fragilex.org.au/
    Fragile X Association of Australia is a registered charity, funded by donations and fundraising. Donations of $2.00 and over are tax deductible. Your donation will help us support families affected by Fragile X, and to increase awareness of Fragile X associated conditions. Make a donation

12 Important Resources for Families with Fragile X ...

    https://www.friendshipcircle.org/blog/2012/08/14/12-important-resources-for-families-with-fragile-x-syndrome/
    Aug 14, 2012 · 12 Important Resources for Families with Fragile X Syndrome Being a parent to a child with a disability, any disability, is like day after day of guiding your family’s boat through a constant storm.

Fragile X Syndrome Support Groups Online DailyStrength

    https://www.dailystrength.org/group/fragile-x-syndrome
    Fragile X Syndrome Support Group. Fragile X Syndrome is the most common inherited cause of mental retardation, and is associated with autism. The fragile X syndrome is a genetic disorder caused by mutation of the FMR1 gene on the X chromosome.

In-Home Support Services (HSS) & Your Taxes Fragile X ...

    https://fraxsocal.org/resources/in-home-support-services-hss-your-taxes/
    The Fragile X Association of Southern California was formed in 1996 to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns, and problems; and support scientific research on Fragile X Syndrome.. We are run entirely by volunteer parents of ...

Fragile X Ireland Fragile X Advice & Information

    http://fragilexireland.org/
    Welcome to the Irish Fragile X Society (IFXS) Online. Welcome to the Irish Fragile X Society (IFXS) online. We hope you will find this site informative and helpful, whether you are a parent/carer, a teacher, or other professional working with an individual affected by Fragile X syndrome.

Fragile X syndrome - Better Health Channel

    https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/fragile-x-syndrome
    Fragile X syndrome is a genetic disorder caused by a change to one of the genes on the X chromosome. It is the most common inherited cause of intellectual disability. Fragile X syndrome is also linked to features of autism spectrum disorder. Fragile X syndrome affects around 1 in 3,600 boys and between 1 in 4,000 – 6,000 girls.



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