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http://curefa.org/support
FAPG Support Group The Friedreich's Ataxia Parents Group (FAPG) is a closed list, limiting subscriptions to parents & guardians of children with Friedreich's Ataxia (or other childhood onset ataxias). From all over the world, parents who are having similar experiences raising children with FA communicate with one another.
https://ataxia.org/support-groups/
Support Groups The National Ataxia Foundation provides a variety of ways to connect with others affected by Ataxia. Find a Local Support Group on Our Interactive Map Join our Facebook Group Become an Ataxia Advocate International Support Groups & Ambassadors Canada Ottawa Support Group Leader Prentis ClairmontOttawa, OntarioPhone #: 613-864-8545E …
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Friedreichs-Ataxia-Fact-Sheet
Aug 13, 2019 · Friedreich ataxia (also called FA) is a rare inherited disease that causes progressive nervous system damage and movement problems. It usually begins in childhood and leads to impaired muscle coordination (ataxia) that worsens over time. In Friedreich ataxia nerve fibers in the spinal cord and peripheral nerves degenerate, becoming thinner.
https://www.facebook.com/Friedreichs-Ataxia-Support-Group-381094891905208/
Friedreich's Ataxia Support Group. 852 likes. A page for those affected by Friedreich's Ataxia.Followers: 870
https://www.chop.edu/conditions-diseases/friedreichs-ataxia/health-resources
2015 Friedreich’s Ataxia Symposium. Watch a recording of the topics presented at the eighth annual Friedreich’s Ataxia Symposium in 2015, including clinical management updates, recent research, information about cardiac function, a conversation about college resources and accessibility, and more.
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