Galactosaemia Support

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Galactosaemia Support Group - NORD (National Organization ...

    https://rarediseases.org/organizations/galactosaemia-support-group/
    The Galactosaemia Support Group (GSG) is a self-help organization that establishes contact and fosters support between patients of all ages with galactosemia, a genetic disorder resulting from defective metabolism of galactose.

About Galactosaemia – Galactosaemia Support Group

    https://www.galactosaemia.org/about/about-galactosaemia/
    What Causes Galactosaemia? The enzyme is deficient or absent because of a mistake or mutation in the genetic code, the DNA. Our chromosomes are made of DNA and carry a coded message rather like a computer programme and make us what we are, for example giving us a particular hair colour.

About – Galactosaemia Support Group

    https://www.galactosaemia.org/about/
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Long Term – Galactosaemia Support Group

    https://www.galactosaemia.org/about/about-galactosaemia/long-term/
    None of these problems are life-threatening and galactosaemic children are otherwise as healthy as any other child provided they continue on their galactose-free diet throughout life. In the future, we hope that research will lead to better ways of preventing some or all of the long-term problems in galactosaemia.

Galactosemia - Prime Health Channel

    https://www.primehealthchannel.com/galactosemia.html
    Jul 17, 2012 · 16 Galactosemia Support Groups It is an uncommon metabolic condition that impairs the ability of a person to properly metabolize galactose, a type of simple sugar that is created during the degradation of lactose or milk sugar.

Galactosaemia Contact

    https://contact.org.uk/advice-and-support/medical-information/conditions/g/galactosaemia/
    Galactosaemia Support Group. Tel: 0121 378 5143 Email: [email protected] www.galactosaemia.org. The Group is a Registered Charity in England and Wales No. 1020167. It provides information and support to anyone affected by galactosaemia, and puts families in …

Community Links — Galactosemia Foundation

    http://www.galactosemia.org/other-resources
    Galactosemic Families of Minnesota (GFMN) - Minnesota, US Support Group. Galactosemia Families of the Southern States (GFSS) - Texas and surrounding states, USA Support Group - contact Jo Beth Southard. Galactosaemia Support Group (GSG) - UK Patient Support Group. European Galactosaemia Society (EGS) - Europe Patient Support Group

Cheese Information – Galactosaemia Support Group

    https://www.galactosaemia.org/food-drink/gsg-publications/cheese-information/
    In October 2000 dieticians working with Galactosaemia held a workshop on the use of cheese in a Galactosaemia diet. The diet in Galactosaemia is based on the exclusion of lactose and therefore also of any foods containing milk and milk products.

Galactosemia - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/galactosemia
    Oct 29, 2019 · Galactosemia is a disorder that affects how the body processes a simple sugar called galactose. A small amount of galactose is present in many foods. It is primarily part of a larger sugar called lactose, which is found in all dairy products and many baby formulas.



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