Group Marfan Support Syndrome

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Local Support & Groups The Marfan Foundation

    https://www.marfan.org/get-involved/connect-community/local-community
    What is Marfan Syndrome? What are Related Conditions? What are the Signs? How is the Body Affected? WHAT IS NEONATAL MARFAN SYNDROME? Current Research; What to Expect. ... Local Support & Groups. Other Ways to Get Support. Phone Support Groups Find a Mentor Become a Mentor Join our Online Community Ask Our Help Center . Can't Find a Group?

Phone Support Groups The Marfan Foundation

    https://www.marfan.org/resources-answers/patients-families/phone-support-groups
    Phone support groups are a great way to connect with others in the Marfan syndrome and related condittions community. Groups meet once a month for six months. Phone support group …

Marfan Syndrome Support Groups Online DailyStrength

    https://www.dailystrength.org/group/marfan-syndrome
    Dec 24, 2016 · Marfan Syndrome Support Group Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system.

Organizations: Are there good support groups for Marfan ...

    https://www.thinkgenetic.com/diseases/marfan-syndrome/organizations/6918
    There are many good support groups for people with Marfan syndrome. These include: The Marfan Foundation; The Marfan Trust charity; International Federation of Marfan Syndrome Organizations; Marfan Syndrome Support Group Ireland; Marfan Association UK

Marfan Syndrome Support Group - MDJunction

    https://www.mdjunction.com/marfan-syndrome
    The Marfan Syndrome Support Group is a community of patients, family members and friends dedicated to dealing with Marfan Syndrome, together.

Marfan Syndrome Support Group Ireland

    http://www.marfan.ie/
    Marfan Syndrome. Welcome to the Marfan Syndrome Support Group website. We hope you will find our site helpful. It is our hope that we can show our support to you and your family through friendship and people to listen.



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