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Prader-Willi Syndrome Association (USA) has been providing life saving research, crisis and family support, medical and new parent support since 1975. Prader-Willi Syndrome Association (USA) has been providing life saving research, crisis and family support, medical and new parent support …
https://pwcf.org/pwcf-support-groups/
PWCF encourages you to connect with and learn from other family members to the extent you feel comfortable. PWCF hosts in-person support and sharing groups that meet regularly in various cities in California. The national PWSA (USA) hosts online support and sharing groups that connect you to families all over the world. Whatever support option best fits you and your family, you never need to ...
https://www.prader-willi.org/support#!
Local Support. If you are the parent of a child with Prader-Willi syndrome and you need to talk with another parent who shares your concerns, please call Nina Roberto (ext. 3) or Barbara McManus (ext. 2) at 800-442-1655 .
https://communitysystems.org/wesupport/prader-willi/
People with Prader-Willi Syndrome ... Families and persons with PWS have the benefit of a very active national association, the Prader-Willi Syndrome Association, which provides newsletters, family support groups, and a national conference, among other services. (1-800-926-4797).
https://www.voyagecare.com/supporting-you/prader-willi-syndrome-support
Prader-Willi syndrome support. Prader-Willi syndrome is a very rare genetic condition affecting approximately 2000¹ adults in the UK. It is caused by a defect of chromosome 15 and affects the brain in a number of ways. This has a significant impact on the mental, physical and behavioural well-being of people with Prader-Willi syndrome.
https://nyconnects.ny.gov/services/prader-willi-syndrome-family-support-group-sofa34899
May 25, 2016 · prader-willi syndrome family support group Description: Keeps a listing of support groups in various areas in New York state, also if parents of a child with Prader-Willi needs to talk and shares their concerns, the contact people are eager to help, to offer advice, share their experiences, and help comfort parents in a time of great need.
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