Hemochromatosis Support Organizations

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Classic Hereditary Hemochromatosis - NORD (National ...

    https://rarediseases.org/rare-diseases/classic-hereditary-hemochromatosis/
    Classic hereditary hemochromatosis is caused by changes (mutations) of the HFE gene. This mutation is inherited in an autosomal recessive pattern. Genetic diseases are determined by the combination of genes for a particular trait that are on the chromosomes received from the father and the mother.

Hemochromatosis Support Groups Online DailyStrength

    https://www.dailystrength.org/group/hemochromatosis
    Hemochromatosis Support Group. Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder.

American Hemochromatosis Society - NORD (National ...

    https://rarediseases.org/organizations/american-hemochromatosis-society/
    The American Hemochromatosis Society (AHS) is a 501(c)(3) non-profit organization dedicated to educating the public, medical community and media by distributing the most current information available on hereditary hemochromatosis (HH).

Organizations: Are there any support groups for people ...

    https://www.thinkgenetic.com/diseases/hemochromatosis/organizations/6690
    There are a lot of good support groups for people with hemochromatosis. There are some Facebook support groups including the Haemochromatosis Society. There are also websites, which provide helpful information on hemochromatosis, such as the American Hemochormatosis Society and the Haemochromatosis Society.

American Hemochromatosis Society

    http://americanhs.org/
    The American Hemochromatosis Society has exhibited numerous times in the past at ASH conventions, which gives the society the opportunity to network with hematologists and other doctors who treat hemochromatosis patients clinically or who do research related to hereditary hemochromatosis (HH).

Neonatal hemochromatosis - Global Genes

    https://globalgenes.org/disease/neonatal-hemochromatosis/
    Neonatal hemochromatosis is a disorder caused by iron building up in the heart, pancreas, and liver in newborns. Liver disease is usually noticeable hours after birth. The iron build up most often leads to liver failure in newborns. Hemochromatosis is typically a genetic disease in which the body absorbs too much iron from food, damaging

Hemochromatosis.org - An Education Website for ...

    https://www.hemochromatosis.org/
    Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease.

Hemochromatosis Genetic and Rare Diseases Information ...

    https://rarediseases.info.nih.gov/diseases/10746/hemochromatosis
    Feb 15, 2018 · Hemochromatosis is a disease in which too much iron builds up in the body.This is also called iron overload. Accumulation of iron in the organs is toxic and can cause organ damage. While many organs can be affected, iron overload is especially likely to affect the liver, heart, and pancreas.Early symptoms of hemochromatosis can include fatigue, weakness, and joint pain.

Give — Hemochromatosis.org - An Education Website for ...

    https://www.hemochromatosis.org/give
    Give to our general fund. Since Iron Disorders Institute is a volunteer-based non-profit, no general funds will go towards a person's salary. Your gift will support the following items: Printed educational materials (books and pamphlets) Digital educational materials (websites) Workshops. Iron certification programs

Hemochromatosis type 4 - Global Genes

    https://globalgenes.org/disease/hemochromatosis-type-4/
    Hemochromatosis type 4 is a disorder caused by a change (mutation) in the SLC40A1 gene. This change causes the body to absorb too much iron as it digests food. The excess iron is stored in several of the body’s organs and can eventually cause cancer, diabetes, irregular heartbeats (arrhythmia), and permanent scarring of the liver



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