Hereditary Hemochromatosis Patient Support And Education

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Hemochromatosis.org - An Education Website for ...

    https://www.hemochromatosis.org/
    As a hemochromatosis patient, you are not alone. Hemochromatosis is believed to affect over 1 million Americans according to the Centers for Disease Control (CDC). This statistic means that 1-250 Americans have full-blown Hemochromatosis and 1-8 Americans are carriers for the genetic make-up. ... Hemochromatosis.org is a digital education and ...

Hereditary haemochromatosis: patient support and education.

    https://www.ncbi.nlm.nih.gov/pubmed/19856645
    Hereditary haemochromatosis is a genetic disorder resulting in iron accumulation. Nurses have a key role in increasing public awareness and educating patients and their families about the condition to enable early detection and effective management.Cited by: 3

Patient education: Hereditary hemochromatosis (Beyond the ...

    https://www.uptodate.com/contents/hereditary-hemochromatosis-beyond-the-basics/print#!
    Patient education: Hereditary hemochromatosis (Beyond the Basics) ... Ferritin levels greater than 300 ng/mL in men and 200 ng/mL in women support a diagnosis of hemochromatosis. However, ferritin levels can also be increased by many common disorders other than hemochromatosis.

Hereditary hemochromatosis Children's Education Materials

    https://www.childrensmn.org/educationmaterials/childrensmn/article/16488/hereditary-hemochromatosis/
    Patient & Family Education Materials. Start over with a New Search. Hereditary hemochromatosis What is hereditary hemochromatosis? Hemochromatosis is when the body absorbs inappropriately high levels of iron. ... Children's Minnesota is registered as a 501(c)(3) non-profit organization.

Hereditary Hemochromatosis Borland Groover

    https://borlandgroover.com/patient-resources/gastroenterology/gi-education/hereditary-hemochromatosis
    Hereditary hemochromatosis (HH) is by far the most common inherited cause of iron overload (1). Without diagnosis and therapeutic intervention, there is a risk that iron overload will occur resulting in tissue damage and potentially premature death. Less common forms of iron overload associated with mutations of transferrin receptor 2, (TFR2), hepcidin, hemojuvelin, and a sub-type of ...

Classic Hereditary Hemochromatosis - NORD (National ...

    https://rarediseases.org/rare-diseases/classic-hereditary-hemochromatosis/
    Individuals with classic hereditary hemochromatosis are at a greater risk of developing liver cancer than the general population. A specific form of liver cancer potentially associated with classic hereditary hemochromatosis is hepatocellular carcinoma. Some HH patients have type 2 diabetes with insulin resistance and high serum insulin.

UpToDate

    https://www.uptodate.com/contents/hemochromatosis-hereditary-iron-overload-beyond-the-basics
    The Basics patient education pieces are written in plain language,… patients with iron overload resulting from hereditary hemochromatosis, secondary iron overload (eg, iron-loading anemias), or other causes. Hereditary hemochromatosis is a common disorder… Patient education: Hereditary hemochromatosis (Beyond the Basics)

American Hemochromatosis Society

    https://americanhs.org/
    The American Hemochromatosis Society has exhibited numerous times in the past at ASH conventions, which gives the society the opportunity to network with hematologists and other doctors who treat hemochromatosis patients clinically or who do research related to hereditary hemochromatosis (HH).

Hemochromatosis Support Groups Online DailyStrength

    https://www.dailystrength.org/group/hemochromatosis
    Hemochromatosis Support Group. Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder.



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