Icthyosis Support

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Ichthyosis Support Group – People who care about ichthyosis

    http://www.ichthyosis.org.uk/
    The Ichthyosis Support Group (ISG) was formed in 1997 by a group of individuals affected by ichthyosis to create a network of parents, sufferers and medics, and became a …

Support Foundation for Ichthyosis & Related Skin Types ...

    http://www.firstskinfoundation.org/support
    How Can We Support You? Welcome to the FIRST family. No matter what stage of life you are in as you continue your journey with ichthyosis or a related skin type, the FIRST community is here to support you. And sometimes a little support can make all the difference.

FIRST - Foundation for Ichthyosis & Related Skin Types

    http://www.firstskinfoundation.org/
    FIRST was established to help individuals and families affected by ichthyosis. Services provided by FIRST include biennial national conferences, regional meetings, a regional support network, publications, advocacy, and a research program.

ARCI-CIE type ichthyosis Foundation for Ichthyosis ...

    http://www.firstskinfoundation.org/types-of-ichthyosis/arci-cie
    What is Autosomal Recessive Congenital Ichthyosis (ARCI) - Congenital Ichthyosiform Erythroderma type (CIE, Non-bullous CIE, nb-CIE)? Autosomal recessive congenital ichthyosis (ARCI) is a recently adopted term referring to a heterogeneous group of disorders that share an autosomal recessive pattern of inheritance, collodion membrane presentation at birth, and overlap in causative gene ...

Ichthyosis vulgaris Genetic and Rare Diseases ...

    https://rarediseases.info.nih.gov/diseases/6752/ichthyosis-vulgaris
    Oct 18, 2013 · Ichthyosis vulgaris is a common skin disorder passed down through families that leads to dry, scaly skin. It often begins in early childhood. Treatment may include heavy duty moisturizers which contain chemicals that help the skin to shed normally, including lactic acid, salicylic acid, and urea.Ichthyosis vulgaris can be a nuisance, but it rarely affects overall health.

Discontinuation of Calmurid® Press... - Ichthyosis Support ...

    https://www.facebook.com/ichthyosissupportgroup/posts/10157437709290874
    Oct 24, 2019 · Ichthyosis Support Group. October 24, 2019 · Discontinuation of Calmurid® Press Release from Galderma : "Due to a number of reasons wholly beyond our control and after careful consideration of all possible options, a company decision at global level has been taken to discontinue Calmurid. One ingredient of Calmurid (DEA (diethanolamine) and ...

Ichthyosis Vulgaris Treatment, Causes & Symptoms

    https://www.medicinenet.com/ichthyosis_vulgaris/article.htm
    Ichthyosis vulgaris is a rare genetic condition that causes very dry skin, xerosis. Living in a humid area, applying topical medications that exfoliate the skin, and using heavy emollients on the skin are recommended treatments. Learn more about causes, symptoms, and signs.

Ichthyosis, X Linked - NORD (National Organization for ...

    https://rarediseases.org/rare-diseases/ichthyosis-x-linked/
    X-linked ichthyosis can be diagnosed before birth by amniocentesis or chorionic villus sampling. Low maternal estriol levels can suggest the presence of X-linked ichthyosis. X-linked ichthyosis is treated by applying skin softening creams and lotions. This can be especially effective after …

Types of Ichthyosis – Ichthyosis Support Group

    http://www.ichthyosis.org.uk/category/types-of-ichthyosis/
    The Ichthyosis Support Group (ISG) was formed in 1997 by a group of individuals affected by ichthyosis to create a network of parents, sufferers and medics, and became a UK registered charity in 2001. In 2011 the ISG became a company limited by guarantee, registered in England and Wales, company registration number 7609904 and new registered ...

Lamellar Ichthyosis – Ichthyosis Support Group

    http://www.ichthyosis.org.uk/lamellar-ichthyosis/
    Lamellar ichthyosis is very rare and you may feel that you are on your own. Fortunately the Ichthyosis Support Group exists in the UK, who will provide you with psychological support and practical information about how best to deal with this condition. This in many ways is the best information as it comes from people who have been through ...



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