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Welcome to IIH UK Information and support for patients, families and medical professionals. The IIH UK website is a source of information for IIH – Idiopathic Intracranial Hypertension, and links to resources and information about IIH.
https://ihrfoundation.org/
The Intracranial Hypertension Research Foundation is the only non-profit organization in the world devoted to supporting the medical research of chronic intracranial hypertension. We also provide assistance, education, and encouragement for individuals with chronic IH, their families and medical professionals. ... Is Vision Loss in IIH ...
https://www.facebook.com/iihsupportgroup/
Iih support group. 534 likes. This groups is for patients and their families to speak to one another and find comfort in speaking with others with this condition! Iih/ptcFollowers: 554
https://www.mdjunction.com/idiopathic-intracranial-hypertension
The Idiopathic Intracranial Hypertension Support Group is a community of patients, family members and friends dedicated to dealing with Idiopathic Intracranial Hypertension, together.
https://rarediseases.info.nih.gov/diseases/4561/pseudotumor-cerebri
Apr 12, 2018 · Idiopathic intracranial hypertension (IIH), formerly known as pseudotumor cerebri, is a condition that affects the brain. Pseudotumor cerebri literally translates to "false brain tumor."This term was used because symptoms of IIH resemble those of brain tumors depsite no tumor being present.
https://www.dailystrength.org/group/pseudotumor-cerebri
Dec 31, 2019 · Pseudotumor Cerebri Support Group. Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture.
https://www.iih.org.uk/component/tags/tag/57-support
IIH UK also have several regional groups throughout the UK where people will talk about local services and meet up for a chat and a bite to eat while offering each other and there families support. Why not join the Facebook support community! Just click on the links below to join a group.
http://www.performcarenj.org/index.aspx
Jan 09, 2020 · The Latest. January 9, 2020: PerformCare has several supports for suicide prevention available, including Youth Suicide Prevention: A Call to Action and the Suicide Prevention Resource Center. Quick links. Launch CYBER Children’s System of Care Providers can access the CYBER system here.; Family Resources Find community resources and supports tailored to your family’s specific needs.
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