Find all needed information about Marfan Support. Below you can see links where you can find everything you want to know about Marfan Support.
https://www.marfan.org/resources/patients
We offer fact sheets about various aspects of Marfan syndrome and related disorders and have an extensive video series that highlights the most commonly asked questions. We offer phone and online support groups for families coping with Marfan syndrome …
https://give.marfan.org/give/85796/#!/donation/checkout
The Marfan Foundation can be contacted at 516-883-8712 or [email protected]. You can also contact us through our website, Marfan.org. Is this donation tax deductible? The Marfan Foundation is a 501(c)(3) nonprofit organization. In accordance with IRS regulations, the Foundation states that no goods or services were provided for this ...
Oct 12, 2019 · The Marfan Trust has three objectives: To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients. To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition. To provide peer-to-peer support and medical guidance to those affected and their families.
https://www.dailystrength.org/group/marfan-syndrome
Dec 24, 2016 · Marfan Syndrome Support Group. Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart.
https://nyulangone.org/conditions/marfan-syndrome-in-adults/support
Marfan syndrome is a lifelong condition, and doctors at NYU Langone provide ongoing support to help people manage the symptoms and improve their quality of life. You may need specialized care to prevent or slow serious medical conditions that can be associated with Marfan syndrome.
http://www.marfanworld.org/
Marfan World, which was formally known as the International Federation of Marfan Syndrome Organizations was founded in 1992 at the Second International Symposium on Marfan Syndrome in San Francisco, California. The mission of Marfan World is to: Share current, accurate information about the Marfan syndrome and related conditions worldwide
https://www.facebook.com/MarfanIreland
Marfan Syndrome Support Ireland. 1.2K likes. Support group for patients, families and friends affected by Marfan Syndrome and Loeys-Dietz Syndrome in the North and South of Ireland.Followers: 1.3K
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