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The Mastocytosis Society is a non-profit organization dedicated to supporting patients affected by Mast Cell Disorders via research, education & advocacy.
http://www.systemicmastocytosis.com/
Mast Cell Connect is a patient registry to advance understanding of systemic mastocytosis and other mast cell diseases. Share your experiences, get data and insights from the registry, and find out about clinical trials. Support the Registry
https://tmsforacure.org/emergency-room-support-info/
Emergency Room Response Plan DOWNLOAD THE PLAN HERE > Emergency Care for Patient with Mast Cell Diseases DOWNLOAD THE BROCHURE HERE > Emergency Room Protocols (Including emergency room response plan and premedication for major and minor procedures) DOWNLOAD THE FULL DOCUMENT HERE > Anaphylaxis VIEW MORE INFORMATION HERE >
https://www.webmd.com/a-to-z-guides/systemic-mastocytosis
Most of the time, systemic mastocytosis doesn't run in families. A random change (mutation) in the KIT gene shows up in mast cells in people with mastocytosis. This gene helps program a protein...Author: Sharon Liao
https://www.lls.org/support/other-helpful-organizations/related-diseases-and-conditions/mastocytosis
To improve the lives of patients with Systemic Mastocytosis Provides disease, treatment and clinical trial information Offers Mast Cell Connect, a patient registry to help improve understanding of the disease Provides referrals to advocacy groups and helpful resources
https://rarediseases.info.nih.gov/organizations/3766
If you have problems viewing PDF files, download the latest version of Adobe Reader. For language access assistance, contact the NCATS Public Information Officer. Genetic and Rare Diseases Information Center (GARD) - PO Box 8126, Gaithersburg, MD 20898-8126 - Toll-free: 1-888-205-2311
https://patientworthy.com/mastocytosis/
Mastocytosis What is mastocytosis? A mast cell, also called a mastocyte or labrocyte, is a specific type of white blood cell that is part of the immune system, which helps protect the body against pathogens and aids the healing process.
https://mastocytosis-mcas.org/global-support/uk/
Benefits of joining our Support Group includes: Communicating in a nurturing, non-judgmental environment with others who have shared a common mast cell condition experience. Sharing Information on dealing with specific problems, overcoming concerns or …
To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need. Goals of UK Masto:
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