Microphthalmia Anophthalmia Support

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ican - the International Children's Anophthalmia Network

    http://www.anophthalmia.org/
    For the support group for families and individuals dealing with anophthalmia and/or microphthalmia. The site has stories, medical information and a parents support forum.

MACS - Microphthalmia, Anophthalmia and Coloboma Support

    https://macs.org.uk/
    Microphthalmia, Anophthalmia and Coloboma Support supporting children born without eyes or with underdeveloped eyes This year, 90 families in the UK will be told their babies have no eyes, small eyes, or a cleft in the eye.

Welcome to the MAPS Page! WonderBaby.org

    http://www.wonderbaby.org/maps
    Jan 25, 2017 · MAPS will provide parent to parent support to others raising children with microphthalmia and/or anophthalmia. By sharing a wide variety of information, MAPS strives to empower parents and reduce the overwhelming feeling of isolation that is all too common when a diagnosis of microphthalmia or anophthalmia is confirmed. MAPS Family Stories

Microphthalmia - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/microphthalmia
    Oct 15, 2019 · Microphthalmia is an eye abnormality that arises before birth. In this condition, one or both eyeballs are abnormally small. In some affected individuals, the eyeball may appear to be completely missing; however, even in these cases some remaining eye tissue is generally present.

MAPS MOMS Microphthalmia, Anophthalmia Parent Support ...

    https://www.facebook.com/groups/123750425284/
    MAPS will provide parent to parent support to others raising children with microphthalmia and/or anophthalmia. By sharing a wide variety of information, MAPS strives to empower parents and reduce...

Facts about Anophthalmia / Microphthalmia CDC

    https://www.cdc.gov/ncbddd/birthdefects/anophthalmia-microphthalmia.html
    Dec 05, 2019 · International Children’s Anophthalmia Network external icon The International Children’s Anophthalmia & Microphthalmia Network is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia. References

Anophthalmia Contact

    https://contact.org.uk/advice-and-support/medical-information/conditions/a/anophthalmia/
    MACS (Microphthalmia, Anophthalmia and Coloboma Support) Helpline: 0800 169 8088 Email: [email protected] www.macs.org.uk. The Society is a Registered Charity in England and Wales No.1161897. It provides information and support for the families of children born without eyes or with underdeveloped eyes.

Anophthalmia - Wikipedia

    https://en.wikipedia.org/wiki/Anophthalmos
    Anophthalmia has been reported to be present in 3 out of every 100,000 births. Many instances of anophthalmia also occur with microphthalmia. A recent study in the UK indicated that anophthalmia and microphthalmia had a combined average of 1 in every 10,000 births.Specialty: Medical genetics

Anophthalmia and Microphthalmia National Eye Institute

    https://www.nei.nih.gov/learn-about-eye-health/eye-conditions-and-diseases/anophthalmia-and-microphthalmia
    Jun 26, 2019 · Anophthalmia and microphthalmia are often used interchangeably. Microphthalmia is a disorder in which one or both eyes are abnormally small, while anophthalmia is the absence of one or both eyes. These rare disorders develop during pregnancy and …

SOX2 anophthalmia syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/sox2-anophthalmia-syndrome
    Oct 29, 2019 · SOX2 anophthalmia syndrome is a rare disorder characterized by abnormal development of the eyes and other parts of the body.. People with SOX2 anophthalmia syndrome are usually born without eyeballs (anophthalmia), although some individuals have small eyes (microphthalmia).The term anophthalmia is often used interchangeably with severe microphthalmia because individuals with no …



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