Find all needed information about Muscular Dystrophy Support Services. Below you can see links where you can find everything you want to know about Muscular Dystrophy Support Services.
https://www.mda.org/services
Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in …
https://www.mda.org/care/request-services
To request services or support, please complete this short form and one of our trained MDA Resource Specialists will contact you. Or, call us directly at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in the U.S.
Since 1958, Muscular Dystrophy Family Foundation (MDFF) has provided financial assistance, quality programs and services for the Muscular Dystrophy community in Indiana. We focus on providing adaptive equipment and direct support services to individuals and family members affected by a neuromuscular disease.
https://www.musculardystrophyuk.org/support-hub/
Welcome to our neuromuscular services and support hub. We’ve designed the hub as a central resource where you can find the information, advice and services relevant to you. Whether you have a muscle-wasting condition yourself, a friend or family member does, or you’re a health professional working with people who have muscle-wasting ...
https://www.cdc.gov/ncbddd/musculardystrophy/links.html
Learn about the signs and symptoms, genetic causes, and inheritance patterns of the different muscular dystrophies. Muscular Dystrophy Association external icon A national nonprofit health agency that works to cure muscular dystrophy through research and provides health care, support services…
https://nyulangone.org/conditions/muscular-dystrophy/support
Muscular dystrophy is a lifelong condition that requires ongoing follow-up care with a doctor who specializes in neuromuscular disorders and conditions. NYU Langone offers a variety of support services for people with muscular dystrophy.
https://www.musculardystrophyuk.org/
Sarepta Therapeutics is looking for people with Limb girdle muscular dystrophy to take part in some research during January and February. The company is using the study to deepen its understanding of how it can support people living with LGMD and the healthcare professionals and doctors who may diagnose or treat those living with the condition.
https://cerebralpalsy.org.au/about-conditions/muscular-dystrophy/
We offer a range of treatments, interventions and support services, tailored to individual needs, to help your child achieve their goals. ... It is a good idea to find out what you can about muscular dystrophy and about the support that is available from organisations such as the Muscular Dystrophy Foundation and Muscular Dystrophy Australia ...
https://www.jessesjourney.com/family-support-resources/
If someone in your family has been diagnosed with Duchenne muscular dystrophy your first instinct will likely be to seek out information on available treatments and other available support services. There’s no question that hearing the diagnosis of DMD is difficult news and can be very overwhelming.
https://www.invitae.com/en/detect-muscular-dystrophy/
Duchenne muscular dystrophy (DMD) is the most common childhood onset form of muscular dystrophy with a prevalence of about 1 in every 3,000 to 5,000 live male births. Age of onset is usually between 3 and 5 years of age. As a whole, muscular dystrophies affect 1 out of every 4,000 to 5,000 people.
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