Myositis Patient Support

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Patient Support The Myositis Association

    https://www.myositis.org/patient-support/
    That’s normal. The Myositis Association provides information on this site that should help answer most of your questions. Please take some time to navigate the site for information about your disease and to find support for the days ahead. TMA also has support resources that can help when emotional challenges threaten to overwhelm you.

Support Groups The Myositis Association

    https://www.myositis.org/patient-support/support-groups/
    This virtual support group is a network of myositis patients and care partners with the same diagnosis who connect by phone or email as a way to give and receive emotional support. Like TMA KIT groups, this group is a safe place where patients can feel free to share their honest feelings without judgment.

Patient assistance programs The Myositis Association

    https://www.myositis.org/patient-support/living-with-myositis/practical-resources/patient-assistance-programs/
    RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need. RX Hope helps patients obtain critical medications that they would normally have trouble affording. They maintain a database where you ...

Find a Support Group The Myositis Association

    https://www.myositis.org/patient-support/support-groups/find-support-group/
    Joining one of the Myositis Association’s support groups connects you with other myositis patients and their families. Enter your location below to find the support group closest to you.

Myositis Financial Assistance Program Myositis Support ...

    https://understandingmyositis.org/programs/financial-assistance-program/
    Myositis Patient Financial Assistance Program Overview. To apply for financial assistance the patient must be a U.S. resident diagnosed with a type of inflammatory myopathy (myositis) or be going through a diagnostic process in which doctors strongly suspect and are testing the patient for one of the forms of myositis through muscle or skin biopsy, EMG, and/or blood work.

International support groups The Myositis Association

    https://www.myositis.org/patient-support/support-groups/international-support-groups/
    The group also leads discussion groups for patients and families and hosts patient education days, medical symposia, and training courses for physical therapists. Myositis UK is a support group for patients and care partners in the UK. It distributes a newsletter via email and provides support services for all types of myositis.



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