Neurofibromatosis Support Forum

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Neurofibromatosis Network Support Group & Forum - Inspire

    https://www.inspire.com/groups/neurofibromatosis-network/
    The Neurofibromatosis Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Neurofibromatosis Network, an Inspire trusted partner. More about this community

Find a Local NF Group - Neurofibromatosis Network

    https://www.nfnetwork.org/community/local-groups/
    The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities. ... Local Groups NF Network Inspire Support Community Camp New Friends. Resources. Webinars Educational Materials Worldwide Resources Other …

Neurofibromatosis Support Group

    https://www.mdjunction.com/neurofibromatosis
    The Neurofibromatosis Support Group is a community of patients, family members and friends dedicated to dealing with Neurofibromatosis, together.

Neurofibromatosis DailyStrength

    https://www.dailystrength.org/group/neurofibromatosis/discussion/neurofibromatos_1
    Feb 18, 2010 · Neurofibromatosis Support Group. Neurofibromatosis is usually noncancerous. There are three types of this condition. Type 1 usually appears in childhood, while Types 2 and 3 appear in early adulthood. Type 1 can cause bone deformities, learning disabilities, and high blood pressure. Type 2 can cause hearing loss, vision loss, and difficulty ...

Resources - Neurofibromatosis Midwest

    https://www.nfmidwest.org/learn-about-nf/resources/
    Neurofibromatosis Midwest Clinics, Awareness, Research, Education & Support. ... Learn and understand as much as possible about neurofibromatosis. Community Support. Don’t fight alone! Meet others in the NF community to learn and share experiences. Get the Latest NF News & Updates.

Neurofibromatosis Support Groups Online DailyStrength

    https://www.dailystrength.org/group/neurofibromatosis
    Neurofibromatosis Support Group. Neurofibromatosis is usually noncancerous. There are three types of this condition. Type 1 usually appears in childhood, while Types 2 and 3 appear in early adulthood. Type 1 can cause bone deformities, learning disabilities, and high blood pressure. Type 2 can cause hearing loss, vision loss, and difficulty ...

Support Groups Patient Information Johns Hopkins ...

    https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/neurofibromatosis/patient-information/support_groups.html
    Many people and families with neurofibromatosis or schwannomatosis appreciate being in touch with other people who are similarly affected. The following is a list of support services which can help the patient and family members cope with the emotional and practical issues being faced.

Other Resources - Neurofibromatosis Network

    https://www.nfnetwork.org/resources/other-resources/
    The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities. ... Other Resources Education. ClinicalTrials.gov - Neurofibromatosis. ... The Neurofibromatosis Network Support Community. Just Ask. Beauty Mark Nation. Facebook .

Home Children's Tumor Foundation

    https://www.ctf.org/
    Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the …

Neurofibromatosis Support - Home Facebook

    https://www.facebook.com/Neurofibromatosis-Support-345030432837/
    Neurofibromatosis Support. 8,995 likes · 16 talking about this. This page was set up to help people share stories and give support to others living with NF.There are links in the link's tab on this...5/5(3)



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