Neurofibromatosis Support Uk

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Nerve Tumours UK Home Nerve Tumours UK

    https://nervetumours.org.uk/
    Nerve Tumours UK is the national charity providing support to people with conditions that cause nerve tumours, such as neurofibromatosis, Schwannomatosis and legius …

Neurofibromatosis Contact

    https://contact.org.uk/advice-and-support/medical-information/conditions/n/neurofibromatosis/
    Nerve Tumours UK is a Registered Charity in England and Wales No. 1078790. It provides information and support to those affected by Neurofibromatosis and Schwannomatosis. They have a network of specialist advisors based in hospitals around the UK.

Neurofibromatosis Support Downloads Nerve Tumours UK

    https://nervetumours.org.uk/what-are-nerve-tumours/information-documents
    Neurofibromatosis Type 1: Information for Teachers . This is a document to help support teachers who have a child with NF1 in their class. It delves into problems that could occur in school, this includes a number of hypothetical scenarios and how the teacher can act.

Neurofibromatosis service - guysandstthomas.nhs.uk

    https://www.guysandstthomas.nhs.uk/our-services/neurology/specialties/neurofibromatosis/overview.aspx
    We are the UK's leading centre for complex NF1, and one of 4 national centres for NF2. We are an internationally recognised centre for the diagnosis of malignant peripheral nerve sheath tumours in NF1, using PET/CT with glucose (fluorodeoxyglucose). Our neurofibromatosis specialists work across many areas. See our team page for more information.

Neurofibromatosis type 1 - NHS

    https://www.nhs.uk/conditions/neurofibromatosis-type-1/
    Support from Nerve Tumours UK Nerve Tumours UK is a charity that aims to improve the lives of people with either type of neurofibromatosis. For more information, you can visit the Nerve Tumours UK website , call its helpline on 07939 046 030 or email [email protected] .

Neurofibromatosis Network Support Group & Forum - Inspire

    https://www.inspire.com/groups/neurofibromatosis-network/
    The Neurofibromatosis Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Neurofibromatosis Network, an …

Neurofibromatosis Support - Home Facebook

    https://www.facebook.com/Neurofibromatosis-Support-345030432837/
    Neurofibromatosis Support. 8,995 likes · 16 talking about this. This page was set up to help people share stories and give support to others living with NF.There are links in the link's tab on this...5/5(3)

Neurofibromatosis Support Groups Online DailyStrength

    https://www.dailystrength.org/group/neurofibromatosis
    Neurofibromatosis Support Group. Neurofibromatosis is usually noncancerous. There are three types of this condition. Type 1 usually appears in childhood, while Types 2 and 3 appear in early adulthood. Type 1 can cause bone deformities, learning disabilities, and high blood pressure. Type 2 can cause hearing loss, vision loss, and difficulty ...

Homepage - Neurofibromatosis Network

    https://nfnetwork.org/
    The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities. ... Local Groups NF Network Inspire Support Community Camp New Friends. Resources. Webinars Educational Materials Worldwide Resources Other …



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