Nord Rare Disease Support Community

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Home - NORD (National Organization for Rare Disorders)

    https://rarediseases.org/
    Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments.

Rare Disease and Genetic Conditions Support Group & Forum ...

    https://www.inspire.com/groups/rare-disease-and-genetic-conditions/
    About this community. The Genetic Alliance Rare Disease & Genetic Conditions Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by Genetic Alliance, an Inspire trusted partner. More about this community

Cancer Support Community - NORD (National Organization for ...

    https://rarediseases.org/organizations/cancer-support-community/
    The Cancer Support Community is a 501(c)(3) rganization dedicated to providing international support, education and hope to people affected by cancer. The CSC offers a menu of personalized services and education for all people affected by cancer. Its global network brings cancer support to the millions of people touched by cancer.

NORD Issues a Rare Decree: Show Your Stripes(TM) for Rare ...

    https://www.ptcommunity.com/wire/nord-issues-rare-decree-show-your-stripestm-rare-disease-day
    Jan 16, 2020 · This campaign takes its cue from the majestic zebra, known for its distinctive stripes. NORD is imploring the world at large to show its stripes in support of the rare disease community leading up to and on Rare Disease Day, which will be observed this year on February 29, the rarest day of all.

Support for Patients and Families - Rare disease

    https://rarediseases.info.nih.gov/guides/pages/120/support-for-patients-and-families
    The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders). RareShare is an online social hub dedicated to patients, families and healthcare professionals who are affected by rare medical disorders.

Funded by FDA, C-Path and NORD to Launch Rare Disease Data ...

    https://c-path.org/c-path-and-nord-to-launch-fda-funded-rare-disease-data-analytics-platform/
    Aug 07, 2019 · Funded by FDA, C-Path and NORD to Launch Rare Disease Data and Analytics Platform . The collaborative project between the organizations will kick off at a launch meeting in September and will aim to reduce barriers for the development of new treatments and cures for rare diseases

NORD Meeting Connects Rare Disease Community

    https://www.cslbehring.com/vita/2019/nord-meeting-connects-rare-disease-community
    Support and Assistance. ... NORD Meeting Connects Rare Disease Community. ... groups together is the idea behind this month’s Rare Diseases & Orphan Products Breakthrough Summit organized by the National Organization for Rare Disorders (NORD). The summit, which takes place Oct. 21-22 in Washington, D.C., is headlined by a keynote address from ...

National Organization for Rare Disorders LinkedIn

    https://www.linkedin.com/company/national-organization-for-rare-disorders
    The National Organization for Rare Disorders, a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations ...Founded: 1983

NORD Awards Ten New Grants in Eight Disease States for ...

    https://www.ptcommunity.com/wire/nord-awards-ten-new-grants-eight-disease-states-rare-disease-research
    Jun 25, 2019 · WASHINGTON, June 25, 2019 /PRNewswire/ -- The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced ten new grants as part of its Rare Disease Research Grant Program, which celebrates its 30th anniversary in 2019.Research grants have been awarded to …

Changing the Landscape of Rare Disease Research PCORI

    https://www.pcori.org/blog/changing-landscape-rare-disease-research
    A rare disease, by definition, affects fewer than 200,000 individuals in the United States. Up to 30 million Americans have a rare disease, and most conditions are poorly understood. The National Organization for Rare Disorders (NORD), the voice of the rare disease community, and PCORI are …



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