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https://nystagmusnetwork.org/
The Nystagmus Network. The Nystagmus Network is a membership organisation. The charity provides advice, support and information about nystagmus, how to support a child through the early years, school and beyond into employment, an educational advocacy service, benefits advice, local and virtual support groups for people living with congenital and acquired nystagmus.
https://nystagmusnetwork.org/contactus/
For information or support from the Nystagmus Network you can speak to someone on the phone throughout normal office hours. From Monday to Friday, Sue will answer the phone, whenever she is available. If she happens to be away from her desk, or in the evenings and at weekends, you can leave a message. Then Sue or Sara will call you back.
https://contact.org.uk/advice-and-support/medical-information/conditions/n/nystagmus/
Nystagmus Network. Helpline: 0845 634 2630 Email: [email protected] www.nystagmusnet.org. The Network is a Registered Charity in England and Wales No. 803440. It provides information and support for people with nystagmus, and their families and professionals. The Network holds events and funds research. Group details last updated February 2016.
https://www.eyecaretrust.org.uk/view.php?item_id=94
Nystagmus is a common side effect of Down's Syndrome. About Nystagmus Network The Nystagmus Network was set up in the mid 1980s and currently has over 800 members. The two main aims of this national self-help group are to support all those affected by nystagmus and to encourage the search for a treatment and a cure.
http://nystagmus.org/entry.html
Support us . There are several ways in which you can support the American Nystagmus Network. Join the American Nystagmus Network and help us in our mission. Make a separate donation via PayPal Hot Links within our site: Join the Nystagmus E-Mail Discussion List (more than 1400participants)
https://www.facebook.com/Nystagmuscouk-246801115395478/posts/
Nystagmus Network UK provides support and information for those with nystagmus, parents and teachers and fosters research. Nystagmus Network UK provides support and information for those with nystagmus, parents and teachers and fosters research. Nystagmus.co.uk shared a photo.
https://www.dailystrength.org/group/nystagmus
Nystagmus Support Group. Nystagmus is rapid involuntary rhythmic eye movement, with the eyes moving quickly in one direction (quick phase), and then slowly in the other (slow phase). Nystagmus is a relatively common clinical condition, affecting one in every 5,000 to 10,000 individuals.
http://www.nystagmus.co.uk/
Oct 06, 2012 · The event usually caters well for everyone; people with nystagmus, friends, family, teachers, medical professionals and researchers. There are usually presentations covering research into nystagmus, the social aspects of having nystagmus and how to support people with nystagmus.
https://patient.info/doctor/nystagmus
Feb 01, 2017 · Gaze paretic nystagmus: This is a jerk nystagmus in the direction of eccentric gaze (eg, when the patient looks right, the nystagmus is to the right). When it is unilateral, its direction is towards the side of the causative lesion. It is associated with vestibular, cerebellar and brain stem disease and with drug intoxication. Rebound nystagmus:Author: Dr Mary Lowth
https://vestibular.org/support_groups
WHY ARE SUPPORT GROUPS HELPFUL? Support groups provide a unique and critical service: acceptance. This forum allows individuals to ask questions and to learn in a non-judgmental and safe environment. Participants know that everyone attending the meeting understands and has compassion for the functional difficulties of getting through each day.
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