Find all needed information about Organizations Support Duchenne Muscular Dystrophy. Below you can see links where you can find everything you want to know about Organizations Support Duchenne Muscular Dystrophy.
https://www.duchenne.com/resources
The Duchenne community is inspiring and supportive. There are many helpful resources and organizations to support families living with Duchenne. Here are just a few to get you started. Sarepta does not endorse nor is responsible for the content of any of the listed websites or the services provided by these organizations. This is not a complete list of available websites.
https://www.thinkgenetic.com/diseases/duchenne-and-becker-muscular-dystrophy/organizations/7809
There are many support groups or organizations for Duchenne muscular dystrophy that provide support, information, advice, referrals to physicians and medical centers, and up-to-date information on research and treatments. Many of these groups also fund research.
Duchenne Muscular Dystrophy is a relentless, cruel disease. It is the world’s #1 lethal childhood genetic disorder. The Foundation to Eradicate Duchenne (FED) exists to fund scientific research for treatments for today’s generation of boys and young men who suffer from Duchenne.
https://www.mda.org/care/request-services
To request services or support, please complete this short form and one of our trained MDA Resource Specialists will contact you. Or, call us directly at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in the U.S.
https://treat-nmd.org/treat-nmd-diseases/duchenne-muscular-dystrophy/
Duchenne muscular dystrophy or DMD is the most common of the muscular dystrophies, affecting approximately 1 in every 3,500 newborn boys. It is caused by a fault in a gene called the dystrophin or DMD gene. A fault in this gene stops the body making a protein called dystrophin.
Need to find Organizations Support Duchenne Muscular Dystrophy information?
To find needed information please read the text beloow. If you need to know more you can click on the links to visit sites with more detailed data.
