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Supporting people affected by Osteogenesis Imperfecta throughout the UK and Ireland. The Brittle Bone Society is the national charity that supports individuals and families affected by Osteogenesis Imperfecta. See how we can support you and your loved ones...
https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/osteogenesis-imperfecta
Osteogenesis Imperfecta (OI) is a genetic condition present from birth. Its primary feature is fractures usually caused by minimal impact. This information sheet from Great Ormond Street Hospital (GOSH) describes osteogenesis imperfecta (OI), what causes it and how it can be managed.
https://contact.org.uk/advice-and-support/medical-information/conditions/b/brittle-bone-diseases/
The Society is a Registered Charity in England and Wales No. 272100 and Scotland No. SC010951. It provides information and support to people affected by the bone condition Osteogenesis Imperfecta in the UK and Republic of Ireland. Group details last updated December 2014.
https://littlepeopleuk.org/information-about-dwarfism-conditions/types-of-dwarfism/osteogenesis-imperfecta
We offer friendship, support and advice to all little people in the UK. ... Less commonly Osteogenesis Imperfecta is inherited in an autosomal recessive pattern; Additional reading about Osteogenesis Imperfecta . ... *Little People UK are not responsible for external website*
https://www.diseaseinfosearch.org/disease/5451/support
The mission of the Children's Brittle Bone Foundation is to provide funds for research into the causes, diagnosis, treatment, prevention, and eventual cure for Osteogenesis Imperfecta (OI), while supporting programs which improve the quality of life for people afflicted with ...
https://www.thinkgenetic.com/diseases/osteogenesis-imperfecta/organizations/27321
There are several support groups or organizations for osteogenesis imperfecta (OI) that provide support, information, advice, guidance, referrals to physicians and medical centers, and up-to-date information on research and treatments.
https://my.clevelandclinic.org/health/diseases/15807-osteogenesis-imperfecta
What is osteogenesis imperfecta (OI)? Osteogenesis imperfecta (OI) is a genetic disorder that affects the bones. This disease causes bones to be very weak and break with little or no trauma. OI is also known as brittle bone disease. People with OI also have weak muscles and bone deformities.
https://brittlebone.org/what-is-oi/about-oi/
What is Osteogenesis Imperfecta? Osteogenesis Imperfecta (OI) is a genetic bone disorder characterised by fragile bones that break easily. ... that equates to around 5000 individuals in the UK living with OI. ... With your support, the Brittle Bone Society can develop more resources to support people affected by Osteogenesis Imperfecta. DONATE.
https://www.evidence.nhs.uk/search?q=osteogenesis+imperfecta
Osteogenesis Imperfecta (OI) commonly know as brittle bone syndrome. Osteogenesis Imperfecta is an inherited condition. Learn about Osteogenesis Imperfecta. More: Evidence Summaries. Teriparatide for the treatment of osteogenesis imperfecta (adults) [PDF] Source: NHS England. Clinical ...
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