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https://www.guidestar.org/profile/27-1750740
mission. to provide funding for medical equipment, living expenses, and research projects to aid pennsylvania families living with the challenge of batten disease every day.Location: PITTSBURGH, PA 15222
https://projects.propublica.org/nonprofits/organizations/271750740
pennsylvania batten disease support 204 fifth ave 5th fl c/o c caputo, pittsburgh, pa 15222-2706 tax-exempt since sept. 2010
https://greatnonprofits.org/org/pennsylvania-batten-disease-support
Mission: To provide funding for medical equipment, living expenses, and research projects to aid pennsylvania families living with the challenge of batten disease every day. Programs: Funding for medical equipment and living expenses to aid pennsylvania families living with the challenge of batten disease every dayLocation: 204 Fifth Ave 5th Fl C/o C Caputo, Pittsburgh, 15222, PA
https://www.nonprofitinfomart.org/organization/271750740/
Pennsylvania Batten Disease Support. General Information. Nonprofit Organization. Pennsylvania Batten Disease Support Address. Pittsburgh, PA 15222-2224. ... Organization which receives a substantial part of its support from a governmental unit or …
https://nonprofitlocator.org/organizations/pa/pittsburgh/271750740-pennsylvania-batten-disease-support
Pennsylvania Batten Disease Support is a tax exempt organization located in Pittsburgh, Pennsylvania. Donations to Pennsylvania Batten Disease Support are tax deductible. This organization has been in operation for 9 years, which makes it significantly younger than other nonprofits in …
https://bdsra.org/faces_location/pennsylvania/page/2/
Batten Disease Support and Research Association (BDSRA) is a GuideStar Exchange Silver Participant Batten Disease Support and Research Association 2780 Airport Drive, Suite 342, Columbus, Ohio, 43219 (800) 448-4570
https://www.guidestar.org/profile/27-1750740
mission. to provide funding for medical equipment, living expenses, and research projects to aid pennsylvania families living with the challenge of batten disease every day.Location: PITTSBURGH, PA 15222
https://projects.propublica.org/nonprofits/organizations/271750740
pennsylvania batten disease support 204 fifth ave 5th fl c/o c caputo, pittsburgh, pa 15222-2706 tax-exempt since sept. 2010
https://bdsra.org/faces_location/pennsylvania/page/2/
What Is Batten Disease? Symptoms and Diagnosis; Types of Batten Disease. CLN1 disease; CLN2 disease; CLN3 disease; CLN5 disease; CLN6 disease; CLN7 disease; CLN8 disease; CLN10 disease; Adult Onset NCL; Locate a Testing Center; Support. Newly Diagnosed? Family and Caregiver Support; Nuts and Bolts of Care; Educational Resources; Support for ...
https://www.nonprofitinfomart.org/organization/271750740/
Pennsylvania Batten Disease Support. General Information. Nonprofit Organization. Pennsylvania Batten Disease Support Address. Pittsburgh, PA 15222-2224. ... Organization which receives a substantial part of its support from a governmental unit or the …
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Batten-Disease-Fact-Sheet
Aug 13, 2019 · At risk for any form of Batten disease are children whose parents have Batten disease, and children whose parents are carriers of an NCL gene that causes the disorder but aren’t severely affected by the disorder, if at all. Adult NCL/Kufs disease B may be inherited as an autosomal recessive or, less often, as an autosomal dominant disorder.
https://greatnonprofits.org/org/pennsylvania-batten-disease-support
Volunteer, donate, read reviews for Pennsylvania Batten Disease Support in Pittsburgh, PA plus similar nonprofits and charities related to HealthLocation: 204 Fifth Ave 5th Fl C/o C Caputo, Pittsburgh, 15222, PA
https://www.health.pa.gov/topics/Documents/Diseases%20and%20Conditions/Rare%20Disease%20Task%20Force%20Report%20-%20FINAL.pdf
Oct 03, 2017 · RARE DISEASES IN PENNSYLVANIA PENNSYLVANIA DEPARTMENT OF HEALTH 7 • We lack a comprehensive list of rare disease experts in Pennsylvania and nationally. This is especially true for those who are undiagnosed and for unnamed rare diseases. • We don’t know the financial impact of rare diseases in the commonwealth.
https://en.wikipedia.org/wiki/Batten_disease
Batten disease is rare; misdiagnosis may lead to increased medical expenses, family stress, and the chance of using incorrect forms of treatment, which may exacerbate the patient's condition. Nevertheless, Batten disease can be diagnosed if properly detected. Vision impairment is the most common observable symptom of the disease.Specialty: Endocrinology
https://bdsra.org/what-is-batten-disease/
What is Batten Disease? Batten disease, or Neuronal Ceroid Lipofuscinosis (NCL), is a family of rare diseases caused by autosomal recessive genetic mutations resulting in the body. These genetic mutations disrupt the cells' ability to dispose of wastes. Cells are thrown out of balance with the build-up of proteins and lipids (fats).
https://www.facebook.com/WG-Tomko-and-Friends-Annual-Fundraiser-251151331580095/about/
Pennsylvania Batten Disease Support is a nonprofit group organized to promote awareness of Batten Disease and provide support for families dealing with it daily. Batten Disease, also referred to as Neuronal Ceroid, is a rare genetic disorder that affects children and adults.
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