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The Pheochromocytoma and paraganglioma RESearch Support ORganization (PRESSOR) is a non-profit consortium of health science professionals at scientific, medical and academic institutions around the world dedicated to research into improved diagnosis, localization, management and treatment of pheochromocytoma and paragangliomas, particularly malignant pheochromocytoma and …
http://www.pressor.org/links/patient_support.php
A patient-based organization established with assistance from a diversified board including healthcare professionals and others. The Pheo-Para website provides a resource that is designed to help both patients and physicians cut through the maze of information related to neuroendocrine diseases so they can make informed decisions for the treatment of pheochromocytoma and paraganglioma.
http://www.pressor.org/about.php
The workshop held during the 16th-18th November 2003 at Banbury Conference Center, Cold Spring Harbor brought together a select group of experts in the field to present data and discuss the current state of knowledge and research about malignant pheochromocytoma.
https://rarediseases.org/rare-diseases/pheochromocytoma/
An organization known as PRESSOR (Pheochromocytoma Research Support Organization) has been launched to facilitate research on this disorder. Information may be found on the organization’s web site at www.pressor.org.
http://www.pressor.org/workinggroups/pathology.php
Pathology Members. Arthur S. Tischler, MD Professor of Pathology Tufts University School of Medicine Tufts Medical Center 800 Washington Street, Box 802 Boston, MA 02111 Phone 617 636-1038 Fax 617 636-8302 [email protected] . Ronald R. de Krijger, MD, PhD Reinier de Graaf Hospital Reinier de Graafweg 7 2625 AD Delft The Netherlands Phone: +31-15-2604547 Fax: +31-15-2604532 …
http://www.pressor.org/facts.php
Definition: The 2004 World Health Organization classification of endocrine tumors defines pheochromocytoma as a tumor arising from chromaffin cells in the adrenal medulla. Closely related tumors in extra-adrenal sympathetic and parasympathetic paraganglia are classified as paragangliomas.
http://www.pressor.org/workinggroups/tumor_models.php
Tumor Models Members. Judith Favier, ... Animal models and cell lines are needed for basic research on the biology of pheochromocytomas and paragangliomas and for preclinical testing of new treatment strategies. Our goals. To provide researchers with information on existing models of pheochromocytoma and paraganglioma.
http://www.pressor.org/workinggroups/trials_therapeutics.php
Clinical Trials and Therapeutics Members. Eric Baudin, ... Mitsuhide Naruse, MD, PhD Department of Endocrinology, Metabolism, and Hypertension Clinical Research Institute National Hospital Organization Kyoto ... patients and health care providers with information on recent advances on the diagnosis and treatment of malignant pheochromocytoma ...
http://www.pressor.org/workinggroups/genetics.php
Diana Benn Senior Research Fellow Cancer Genetics Kolling Institute of Medical Research Royal North Shore Hospital St Leonards NSW 2065 Australia Tel : +61 2 9926 4767 Email : [email protected] Goals. To provide patients and clinicians with information on recent advances on new genes involved in pheochromocytoma and paraganglioma ...
https://www.pheochromocytoma.org/news2005.html
Several members from the Pheochromocytoma Support Board and Pheochromocytoma Organization represented our group at this symposium, and gave presentations on what our group has to offer in the form of information and support. Organizers of this symposium are looking for some patients who would be willing to share some of their stories.
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