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The National PKU Alliance (NPKUA) is a vital voice for the PKU community. We work towards expanding PKU research and accelerating the timeline for a cure by investing in peer-reviewed and targeted research. We provide education and support to people living with PKU.
https://www.kuvan.com/support-resources/
PKU Support and Resources Patient Assistance and Educational Materials. BioMarin is committed to providing programs and resources to help support people with PKU and caregivers along their journeys with PKU. PKU.com—Join the PKU Community. PKU.com is an informative online resource for people living with PKU. Information about PKU and how it ...
https://www.dailystrength.org/group/phenylketonuria-pku
Phenylketonuria (PKU) Support Group. Phenylketonuria [PKU] is a human genetic disorder, in which the body lacks phenylalanine hydroxylase, the enzyme necessary to metabolize phenylalanine to tyrosine. Left untreated, the disorder can cause brain damage and progressive mental retardation as a result of the accumulation of phenylalanine and its ...
https://www.pku.com/community-and-support/pku-community-old
Join our phenylketonuria (PKU) community on Facebook. Watch how others manage their PKU. PKU twitter. Build a circle of support with others who understand life with PKU.
https://www.pkuconnect.com.au/what-is-pku/pku-support-groups/
PKU Connect > What is PKU > PKU Support Groups. PKU Support Groups. Tweet Get to know your Metabolic Community! Follow the links below to find out more about these PKU support groups. Metabolic Dietary Disorders Association of Australia (MDDA) PO Box 33 Montrose, VIC. 3765
https://pkunews.org/support/
National PKU News is a 501(c)(3) non-profit organization. All donations are tax-deductible to the fullest extent allowed by law. We rely on the support of the PKU Community, and, because our numbers are so small, their friends and family, to continue our work.
https://www.pku.com/community-and-support/resources
Phenylketonuria (PKU) resources and advocacy groups. The American College of Medical Genetics and Genomics (ACMG) guidelines. Blood phenylalanine (Phe) control questionnaire. Methods for tracking Phe. Collect blood Phe at home. PKU care team contact sheet. PKU clinic discussion guide. PKU pantry table. National PKU Alliance (NPKUA). PKU toolkit.
What is the NSPKU? The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More. What is PKU? Phenylketonuria is a rare inherited condition which can be treated with a low protein diet. Read More. Publications. News & Views 152.
Phenylketonuria (PKU) information. PKU isn’t just a diet thing; it’s a brain thing. Best ways to care for your child with PKU. Protect a developing brain from high blood phenylalanine (Phe) levels. PKU can impact how you think, feel, act, and function. High or unstable …
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