Find all needed information about Porphyria Support. Below you can see links where you can find everything you want to know about Porphyria Support.
https://porphyriafoundation.org/
The APF Proudly Supports Nichole Zimmardo. Congenital Erythropoietic Porphyria "The APF has been our beacon in the ocean. It is our foundation of knowledge and support that has been helping us to better understand the CEP.
https://porphyriafoundation.org/for-patients/support-assistance/
Support & Assistance. The American Porphyria Foundation provides many support and assistance programs for our members. These valuable resources are intended to guide patients and families that are impacted by Porphyria.
https://www.dailystrength.org/group/porphyria
Nov 13, 2018 · Porphyria Support Group. The porphyrias are inherited or acquired disorders of certain enzymes in the heme biosynthetic pathway (also called porphyrin pathway). The hepatic porphyrias primarily affect the nervous system, resulting in abdominal pain, vomiting, acute neuropathy, seizures, and mental disturbances, including hallucinations ...
https://www.webmd.com/a-to-z-guides/porphyria-symptoms-causes-treatment
Getting Support. When you're managing porphyria, just as with any serious medical problem, it's important to reach out to family and friends. They can give you the emotional backing you need and ...
https://www.mayoclinic.org/diseases-conditions/porphyria/symptoms-causes/syc-20356066
Nov 18, 2017 · Porphyria is usually inherited — one or both parents pass along an abnormal gene to their child. Although porphyria can't be cured, certain lifestyle changes to avoid triggering symptoms may help you manage it. Treatment for symptoms depends on the type of porphyria you have.
http://www.porphyria.org.uk/
Porphyria refers to a group of disorders that affect the production of heam. The British Porphyria Association (BPA) is a national charity that supports patients and works to improve overall understanding of porphyria and how it affects affect lives of patients.
https://www.mdjunction.com/porphyria
The Porphyria Support Group is a community of patients, family members and friends dedicated to dealing with Porphyria, together.
http://www.drugs-porphyria.org/languages/UnitedKingdom/index.php
The Norwegian Porphyria Centre is responsible for the development of this multi-language drug database.The UK national version of the porphyria drug database is based on the Read Codes and Drugs Appliance Directory (NHS Connecting for Health Services Support Unit) of medicines available in the UK.
https://www.porphyria.com/living-with-ahp
Everyday living with AHP. ... One of the tricky things about porphyria is, you never know how you’re going to feel from day to day. On a bad day, I literally spend all day on the couch. ... Seek information and support. The American Porphyria Foundation focuses on porphyria education, advocacy, support services, and research.
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