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https://www.dinet.org/forums/forum/1-dysautonomia-discussion/
Feb 10, 2018 · POTS Video: Living with POTS Information guides for family and friends NCS PAF MSA EDS Find a physician Newsletter - Dysautonomia News Link Directory Studies - Open Recruitment Research & News All of Us Research Program - NIH Physicians Find A Physician Advisors
Providing information and support about postural orthostatic tachycardia syndrome (PoTS) for sufferers, medical professionals, family, and friends - aiming to raise awareness.
https://forums.att.com/conversations/att-phone-features/pots-telephone-line/5defc590bad5f2f6061356ed
Aug 25, 2016 · How in the world am I supposed to get a POTS telephone line? I dont want uverse or anything else, just a regular old landline. I called at least 30 at&t phone numbers, and all that I got was robots and people from india, I want to talk to an american person, or a phone book!
Ivabradine is a drug currently used to treat heart failure but is not currently used for the treatment of POTS. Read more about this study. Recruiting: What is it like living with POTS during emerging adulthood? Virginia Tech is recruiting 18 - 29 year olds diagnosed …
https://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266
This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
https://www.narcolepsysupport.org/forums/topic/pots/
Feb 20, 2019 · Index › Support Center Forums › Other Sleep Disorders › POTS This topic contains 6 replies, has 4 voices, and was last updated by Natdoc 11 months ago. This post has been viewed 819 times Viewing 7 posts - 1 through 7 (of 7 total) Author Posts June 26, 2018 at 12:13 pm #6456 FerretModerator […]
https://themighty.com/2016/11/pots-and-dysautonomia-support-groups-and-feeling-alone/
It makes you feel empowered and gives you a sense of community. It’s so positive and brings hope. You don’t have to explain to them what dysautonomia or POTS are. Being in the support group gives me so much strength and joy. I am inspired by those in my support group, seeing them fight and give back to …
https://www.healingwell.com/community/default.aspx?f=42&m=2370247
Mar 16, 2012 · Postural orthostatic tachycardia syndrome (POTS) is a condition characterized by an inappropriate elevation in heart rate when standing up. People who have POTS experience symptoms - most often lightheadedness and palpitations - whenever they are upright. Their symptoms can vary in severity from quite mild to incapacitating.
Dr. Raj says that the information collected as part of this survey "will help us learn more about the possible underlying causes and risk factors for developing POTS, treatments, and the economic, educational and social impact of POTS on patients and their families."
https://myheart.net/pots-syndrome/
What Is POTS? A Brief Definition. POTS is a form of dysautonomia that affects the flow of blood through the body, thereby causing dizziness when standing. Technically, someone has POTS if their heart rate increases by 30 beats per minute or their heart rate is greater than 120 beats per minute within 10 minutes of standing up.
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