Prader Willi Parent Support

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Family Support - Prader-Willi Syndrome Association (USA)

    https://www.pwsausa.org/family-support/
    PWSA (USA) Parents/Siblings of Adult Children 30+ is a sharing and support group for both parents and siblings of individuals over 30 diagnosed with PWS. Positive Behavioral Support is an essential tool for all caregivers of a person with Prader-Wili syndrome.

pwany Support

    https://www.prader-willi.org/support#!
    Local Support If you are the parent of a child with Prader-Willi syndrome and you need to talk with another parent who shares your concerns, please call Nina Roberto (ext. 3) or Barbara McManus (ext. 2) at 800-442-1655 . Nina or Barb can direct your call to a parent living near you.  Don’t hesitate to make contact — we are here for you.

Parents and carers support The Prader-Willi Syndrome ...

    http://www.pws.org.au/parents-carers-support/
    Prader-Willi Syndrome (PWS) is a complex, multi-stage disorder. The person will need health services and disability services to support their inclusion in education, the workplace and the community. The health and disability needs change throughout the stages of the person’s life.

For Parents - Prader-Willi California Foundation

    https://pwcf.org/for-parents/
    This parent section is divided into age groups so start with whichever link above fits your child’s age. There is a great deal of information available to parents and care providers of persons diagnosed with Prader-Willi syndrome.

Understanding Prader-Willi Syndrome

    http://understandingpraderwillisyndrome.org/
    Families. Studies of mothers and siblings show that they may experience stress when living with a child with Prader-Willi syndrome. Therefore, the whole family needs extra support in coping with daily life with PWS. Some helpful sources of support are parent groups and sibling networks.

Prader-Willi Syndrome Association - Prader-Willi Syndrome ...

    https://www.pwsausa.org/
    Prader-Willi Syndrome Association (USA) has been providing life saving research, crisis and family support, medical and new parent support since 1975.

First Steps: A Parent's Guide to Prader-Willi Syndrome

    https://www.fpwr.org/first-steps-a-parents-guide-to-prader-willi-syndrome
    First Steps: A Parent's Guide to Prader-Willi Syndrome. As parents of children with PWS, we know what it's like to feel overwhelmed and isolated – especially in …

Prader-Willi Syndrome Association of Georgia, Inc ...

    https://www.pwsaga.org/
    Prader-Willi Syndrome Association of Georgia, Inc. "Our hope is that we can be a resource for anyone who has a loved one with PWS, supports a person with PWS, or just wants to know how to better support a person with PWS."

Prader-Willi syndrome - Penn State Hershey Medical Center

    http://pennstatehershey.adam.com/content.aspx?productId=117&pid=1&gid=001605
    Definition. Prader-Willi syndrome is a disease that is present from birth (congenital). It affects many parts of the body. People with this condition feel hungry all the time and become obese. They also have poor muscle tone, reduced mental ability, and underdeveloped sex organs.



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