Find all needed information about Prader Willi Parent Support. Below you can see links where you can find everything you want to know about Prader Willi Parent Support.
https://www.pwsausa.org/family-support/
PWSA (USA) Parents/Siblings of Adult Children 30+ is a sharing and support group for both parents and siblings of individuals over 30 diagnosed with PWS. Positive Behavioral Support is an essential tool for all caregivers of a person with Prader-Wili syndrome.
https://www.prader-willi.org/support#!
Local Support If you are the parent of a child with Prader-Willi syndrome and you need to talk with another parent who shares your concerns, please call Nina Roberto (ext. 3) or Barbara McManus (ext. 2) at 800-442-1655 . Nina or Barb can direct your call to a parent living near you. Don’t hesitate to make contact — we are here for you.
http://www.pws.org.au/parents-carers-support/
Prader-Willi Syndrome (PWS) is a complex, multi-stage disorder. The person will need health services and disability services to support their inclusion in education, the workplace and the community. The health and disability needs change throughout the stages of the person’s life.
https://pwcf.org/for-parents/
This parent section is divided into age groups so start with whichever link above fits your child’s age. There is a great deal of information available to parents and care providers of persons diagnosed with Prader-Willi syndrome.
http://understandingpraderwillisyndrome.org/
Families. Studies of mothers and siblings show that they may experience stress when living with a child with Prader-Willi syndrome. Therefore, the whole family needs extra support in coping with daily life with PWS. Some helpful sources of support are parent groups and sibling networks.
Prader-Willi Syndrome Association (USA) has been providing life saving research, crisis and family support, medical and new parent support since 1975.
https://www.fpwr.org/first-steps-a-parents-guide-to-prader-willi-syndrome
First Steps: A Parent's Guide to Prader-Willi Syndrome. As parents of children with PWS, we know what it's like to feel overwhelmed and isolated – especially in …
Prader-Willi Syndrome Association of Georgia, Inc. "Our hope is that we can be a resource for anyone who has a loved one with PWS, supports a person with PWS, or just wants to know how to better support a person with PWS."
http://pennstatehershey.adam.com/content.aspx?productId=117&pid=1&gid=001605
Definition. Prader-Willi syndrome is a disease that is present from birth (congenital). It affects many parts of the body. People with this condition feel hungry all the time and become obese. They also have poor muscle tone, reduced mental ability, and underdeveloped sex organs.
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