Prader Willi Syndrome Support

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Family Support - Prader-Willi Syndrome Association (USA)

    https://www.pwsausa.org/family-support/
    A family living with a child with Prader-Willi syndrome (PWS) faces some unique challenges. Remember, if you reach a particularly tough point, you can always call a Family Support Counselor to vent and perhaps think through some new strategies and responses to your situation and …

Prader-Willi syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/prader-willi-syndrome
    Oct 15, 2019 · Prader-Willi syndrome is a complex genetic condition that affects many parts of the body. In infancy, this condition is characterized by weak muscle tone (hypotonia), feeding difficulties, poor growth, and delayed development.

PWSA UK Support for those living with Prada-Willi Syndrome

    https://www.pwsa.co.uk/
    Prader-Willi syndrome (PWS) is a rare, complex genetic disorder that affects both males and females from birth and throughout their lives.

Prader Willi Syndrome National Council for Special ...

    https://www.sess.ie/categories/assessed-syndromes/prader-willi-syndrome
    Acquired Prader-Willi Syndrome: symptoms associated with Prader-Willi syndrome can be ‘acquired’ by damage to, or a dysfunction of, the hypothalamus (the hypothalamus is the part of the brain that controls body temperature, cellular metabolism, and functions such as eating and sleeping). In these cases, the student will not have any of the ...

Prader-Willi Syndrome Support - South Africa - Home Facebook

    https://www.facebook.com/pwsasa
    Prader-Willi Syndrome Support - South Africa, Cape Town, Western Cape. 690 likes. Facebook page of the Prader-Willi Syndrome Support Group of South Africa5/5(1)

Prader Willi syndrome support and accomodation - Consensus ...

    https://www.consensussupport.com/support/our-support/prader-willi-syndrome/
    About Prader-Willi Syndrome. Prader-Willi Syndrome (PWS) is a rare genetic condition, affecting an estimated 1500 – 2000 people in the UK of all ages. Individuals are restricted in their daily life through their insatiable appetites and they may experience other complications, such as restricted growth and behavioural problems.



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